Lichen Planus Support Group

I am extremly angry right now with my lichen planus I have not been offically diagnosed still waiting for biopsy to come back but the pictures and symptoms all match my condidtion. My feet are extremly swollen and walking is becoming a unbearable task unless I take 600mg of motrin every four hours . I just went back to school to be a nurse and start my second semester in a few days, I want to cry the pain and itching is starting to wear on my usual chipper personality. is swelling of the feet and pain a symptom any one in this group can relate to. I call my derm and only get until the biopsy comes back use the cream(that doesnt work) Help Im getting desprate here. OHh and one more thing I had a blood transfusion about two years ago after the birth of my seventh child should I request a Hep C test?

Hi Rickie -

I am so sorry you are having such a hard time. Try Benedryl for the itching. I higly recommend a Hep C test and I wish I had some more definate answers for you. Hang in there and keep bugging your Derm for the biopsy results and ask for a prescription for the itching (aterax - sp?) and a painkiller and keep up with the ibuprofin for the swelling. You also may want to try a round of Step-down Prednisone treatment - It works for some. We are always here for you. Don't give up! Stay Strong!

Smiles

They wont give me Predisone till the biopsy comes back in the meantime they gave me triamcinolone acetonide cream(doesnt work. What method has worked the best so far from the support group? Im pretty sure my feet have the hypertrophic form of Lichen Planus but the rest of my body is all intense itching bumps. It has been about two months now. I look like I have a plague LOL not a sexy disorder

Hi Rickie,

I have LP on my gums but the first thing my docs did after being diagnosed was take me off motrin. I had been taking it for my knees. Certain types of meds inhibit the LP. My knees hurt so bad after stoping the motrin but I was told I could NEVER take this type of med again. I don't have the same symptoms you have, but I am being treated w/predinose - been on it almost a year. My doc has treated LP before and studied it in Miami. He is located in Tysons Corner, VA if you want his number. He also has a web site. If you are interested in contacting him, just let me know, he is more than willing to help. Good luck to you.

Kurrlysue

I would love for you to give me that information. Im kinda scared right now not being able to walk with these swollen feet is getting to be a tremedous burden especially being a full time student and a mothe of seven

Hi Rickie, until your diagnosis comes back i will just add that Triamincolone(sp) is not the strongest that you can have as an adult. You may try requesting Diprolene instead. It is stronger so can be used for 2 weeks and then stopped for a week with just hydrocortisone and then back on the Diprolene as necessary.

Dear Rickie, I can just say - Relax. Don't get angry, think of ur 7 kids. I am a mother of two. I really used to be so troubled with LP on my feet that used to get irritable and scold my lovely innocent darlings. The day I realised this, I decided I have to become stronger and not let the disease ruin my temperament, though my skin has been literally ruined. The moment I come back from work, I walk bare- footed 'coz lesions develop at the point of contact of whatever I wear. Now I have somewhat accepted this- has been 12 months I was diagnosed. Always thought- Why me? Then joined this support group. I pen down my emotions on this site whenever tense...Really some miracle occurs...start feeling better even with the lesions. I have read so much abt LP that it is a self-limiting disease. So lets see whats in store for us....God bless you.....

My kids are my joy so my anger is manly because I cant get around now with the feet swelling and pain plus Im scared when I start back Tuesday in school it will interfer with my dream of becoming a nurse. I am a very active person and this is a huge hinderance for me plus it looks plain yucky and believe me Im not at all vain but I look diseased. I have it over 80% of my body even in between my toes armpits privates breasts stomach and my enitre back of my body from feet to middle of back every square inch. The doctor finally gave me Prednisone today before the biopsy results because he said I have a severe form of it and took pictures of my LP. It especially alarmed him that I went from about 20% coverage to 80% in two weeks time. The itching and extreme feet issue are uncomfortable to say the least but my humor as usual is always at it's best and Im so glad to find other who can relate to me since when I tell most what I have there puzzled. Thank You for your encouraging words

Dear Rickie, you're welcome. If God be for us, who can be against us? Not even our body.........Lets keep faith that our disease process will go away- and all marks- the tell-tale signs of LP fade away...And one fine day, we all rejoice in the glory of the Lord.....

hello i was reading your message, can you give the dr name and number