Li-Fraumeni Syndrome Support Group

I have sad news tonight my 19 year old Nephew Josh lost his battle with cancer yesterday. My brother has lost his wife (heart aneurysm) at 37, His daughter to (brain cancer) at 8 and now his only child left to Lipo sarcoma. My brother has had cancer twice himself. I have had it once. This Li-Fraumeni is such a monster. My only child (23) is being tested as we speak. I pray he comes out negative. Most people cannot understand how horrible this is. I know you all can though. Thanks for being here.

Oh Susan! I am without words! I know that nothing anyone can say will ease your pain at the moment. My thoughts and prayers are with you and I wish you my heartfelt condolences. I was hoping so hard that the outcome for your nephew would be positive. I will be on pins and needles also while you await the results of the LFS testing. My nephew's results came in while I and my sister were both in the hospital undergoing cancer treatments, so I kinda know what it means to wait and for results during critical times. I hope your results will be negative as they were with my nephew. I couldn't have received better news at the time and I so wish the same for you and your family as well.

Again, I can't even begin to express how sad I am for your loss. We are all here for you!

Shoonu

((((SUSAN))))

I am so so sad to read this. I wish that I had more than words and thoughts to offer you and your brother right now. Your family has gone through too much. I am praying to the Universe for a non-LFS test result for your child. If there is anything we can do for you, please please don't hesitate to ask.

Much love and light to you.

Trishia

I am so sorry for all of the losses you and your brother have had. My thoughts and prayers are with you. I understand the worry that you must have about the results for your daughter.

HUGS!

Susan, words cannot express how sorry I am for you, your brother and your entire family. My thoughts and prayers are with you. My prayers are also with you for a negative result for your son. We who understand how evil this LFS is are here for you.

John

Post edited by: dmooney, at: 02/04/2013 07:20 AM