http://www.mdjunction.com/forums/leukemias-discussions/feed http://www.mdjunction.com/forums/leukemias-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Fri, 24 May 2013 21:27:57 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/3851431-cml-leukemia#10699474 Hi Suzzie63, First of all, I sincerely appreciate your support. As you stated the doctors do not have CML and every single case is different. My husband happens to have severe fatigue, nausea, and overall aches and pains. He was taken off Gleevac because after being on it for a while, the doctors said he was doing better so he decided to go back to work. My husband's line of work is extremely stressful. Within 2 months of being back to work his white blood cell count started to go back up and h... Wed, 22 May 2013 01:14:43 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10689816-52-yr-old-husband-diagnosed-with-cml-42011#10698048 For some reason I have got some responses to my post via my cell phone but when I go on my computer... I have no responses. I'm not sure how this discussion group works or when someone responds to something I write. I would love some advice on what to do and when I know if someone has replied to something I wrote.:) I'm not computer savvy at all!! Anyway, I read a response to my post by a few of you and I appreciate all the support I can get!! Thank you! One of you asked why he was taken off Gle... Tue, 21 May 2013 12:26:17 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10560214-chronic-graft-vs-host-disease#10560214 Is there a support group for CGVHD? It seems to me with the increase in survival rates this population should get more attention then it currently does.... Tue, 19 Mar 2013 09:46:07 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10446662-waldenstrom-mac#10479610 I'm sorry I can't help you personally with your diagnosis ~ I don't have Waldenstrom's however I found this site that may help you both in understanding it and possibly locating a support group. Here's the link and I wish you all the best: http://www.iwmf.com/about-us/... Tue, 12 Feb 2013 19:36:49 -0800 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10451443-how-to-test#10460066 Hi That was very nice that you wanted to be respectful of others, but you can ask or write anything you want. We want to help you to get a answer to the way your feeling. I did not lose weight when I was diagnosed with Leukemia. I had not symptoms except for constant fatigue. I wanted to sleep all the time, but I also had a very stressful job. I kept blamin it on my job. You are not going to get peace of mind until you go see another doctor. I do not know how your insurance works, but I ... Tue, 05 Feb 2013 16:04:03 -0800 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10266135-diagnostic-help-please#10420230 Hi: Sounds like you have a lot going on, but you can drive yourself nuts trying to diagnose yourself. I have Leukemia (CML). There are all different types. I went for a routine blood test back in 1998, and my numbers were high regarding my White Count mostly. The doctor did not try to guess anything. I immediately had a bone marrow biopsy to see if anything showed up, and thats how they found my Leukemia. Blood counts can go up and down on a daily basis, and it could be so many things ... Tue, 22 Jan 2013 17:09:23 -0800 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10160638-long-term-effects#10174116 It's actually been awhile since I have had insurance, I don't know if you go to one of those affordable clinics if they do blood work tests or not. It's worth looking into today. Thanks for the suggestion :)... Sun, 14 Oct 2012 12:25:57 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/10028602-increased-accumulation-in-marrow-pet-ct-help#10032544 Hi Tim: I really do not know what could be going on,but seeing a Hematologist is the way to go right now. I would see a Hematologist/Oncologist so that the marrow is checked out to see why this is going on. They might end up refering you to another doctor, but start with that first. Post your results after you see this doctor. I will pray all goes well.... Thu, 23 Aug 2012 17:23:17 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/3973682-help-my-son-please#3973682 Please check out our online campaign and spread the word! http://www.indiegogo.com/zachluke He was diagnosed with ALL Please spread the link on facebook, like it from the campaign site and spread the news, he needs these treatments. Thank you... Thu, 02 Aug 2012 12:19:57 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/3920894-recently-diagnosed-with-all-what-should-i-expect#3927420 Hi Sabrinamarie and welcome. I'm so glad you found us here. You can expect a flood of information so I suggest you take someone else with you because you will be overwhelmed with info. I would assume you will also have a bone marrow biopsy to study exactly what your blood cells are doing. Try not to be too scared. There are many treatments out there now that can put you in remission and in time you can live a normal life. They may talk to you about a bone marrow transplant and or chemo. ... Wed, 18 Jul 2012 06:32:05 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/3756430-aml-wbc-recovery-time#3757145 Hi fuckcancer....love your name!! I'm not really knowledgable about AML but I am here to support you. My husband has CML and is in remission. I know AML is much harder to control but it can be done. The hospital is the best place for your mom right now. I'm not sure why her wbc's aren't coming back up but hopefully the doctors will be able to fix that. Will she be having a bone marrow transplant? My thoughts and prayers are with you. Keep us posted. We're here to listen and help when we... Sun, 20 May 2012 09:04:50 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/3699278-young-man-with-luekemia-who-refused-treatment#3740847 Hi Ebc: We do not mean to scare or upset you, but Nancy has had a lot of experience in the medical field, and I worked in the medical field for specialists before I had to stop working due to my Leukemia. I guarantee this is not Leukemia, and now I am thinking on the same track as Nancy with all of this. Please take care of your daughter. She should be your first concern right now. Like I said something is wrong, and your not getting the whole story. You better sit down with your daug... Mon, 14 May 2012 20:29:03 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/3468237-acute-leukemia-diagnosis-for-neighbor-in-shock/limitstart/10#3533188 Thank you nj.......... Sun, 04 Mar 2012 07:52:05 -0800 http://www.mdjunction.com/forums/leukemias-discussions/medicine-treatments/3123759-aml-apml-ayurveda-is-the-best-option-by-far#3123759 AML and ApML are well treatable in Ayurveda. Probably this is the only remedy that cures leukemia with out side effects. Myeloblasts come down to 0% level within 2 weeks of medication and marma addressing, working much faster than what chemo does. (chemo is hell, so much side effects.) Marrow gets revived and the blood counts become normal. The speed of recovery among children is amazing. Chance of relapse is very seldom. I am glad to extend support to patients, especially children suffering fro... Thu, 13 Oct 2011 13:36:05 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/2618968-cll/limitstart/10#2994958 So, RMH71, did the surgeon shed some light on what's going on with you? Did s(he) discuss your most recent scans and compare them to earlier ones? Is surgery in the cards for you? We care and hope you can share what's going on...we hope for the best! :)... Sun, 21 Aug 2011 20:35:22 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/2918408-bone-marrow-biopsy#2921608 Thx Suzzie...I think hema doc will do it. He is part of a large regional oncology practice and will prob do the bloodlabs if I see him before December. I think he's good (young) but if I do have some kind of leuk may see someone else, Idk. Yes, I'm skipping the vegan diet...actually kinda happy about that lol. I agree: let the doc do the testing/investigating and follow-up on what he finds (or doesn't find)! Thx again..happy Sunday to you! :)... Sat, 23 Jul 2011 20:36:57 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/2639648-relatively-newly-diagnosed#2666911 Suzzie is right on. Also, and this can be hard, try to get some perspective. You are going through an intensely difficult time of your life. That being said it doesn't mean you stop living. Listen to your body. If it's telling you to rest by all means rest/ But if you think you can get outside and push yourself to go just a little farther than you thought you could- chalk that up as a win. also remember as hard as it is for you, your friends and family are hurting also. They may not know ... Fri, 22 Apr 2011 19:50:56 -0700 http://www.mdjunction.com/forums/leukemias-discussions/general-support/2504800-leukemias-videos-on-mdjunction#2517122 Hi - it's me again... I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that! and another (not related) topic...Two weeks ago we added to the (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!! CU roy... Wed, 09 Mar 2011 03:16:34 -0800 http://www.mdjunction.com/forums/leukemias-discussions/lounge/2388350-arctic-blast-tips#2393228 Wrap up in warm blanket and stretch out on the couch :) :) :)... Fri, 04 Feb 2011 17:02:40 -0800 http://www.mdjunction.com/forums/leukemias-discussions/general-support/2213267-wbc#2260400 Hi Suzzie and sorry for posting so late...btw: Happy New Year!:y32b4: I'm currently not being treated for anything...saw Dr. R. (hemat doc) for low wbc initially and he dx iron-deficient-anemia. Long story short: I have the worst case of gastritis one can have and am waiting for GI to determine a surveillance schedule. I have one last visit with Dr. R. next June before he releases me (if blood labs are normal). Questions? Holler back... and I'll respond sooner! :-D... Sat, 01 Jan 2011 18:43:11 -0800