Klippel-Feil Syndrome Support Group

Hi everybody!

The doctor started me on gabapentin today. She put me on 600 mg three times per day. It's just a temporary prescription to help until they can figure out the source of my latest spasm outbreak. She says I may need it the rest of my life, but hopes we can find out the source and deal with it some other way.

At any rate, my question for everybody is how do you deal with the nausea? It is BAD tonight. Any ideas or tricks to help? I would appreciate ANY thoughts on the subject!

Thanks!

-Gilbert

I have been on Gabapentin for a week now... 300mg, 3 times a day... makes me a bit droggy, but haven't had any nausea... Are you taking it with food? I wonder if your doctor could prescribe something for the nausea... Hang in there, I have pretty wicked spasms in my left leg and slight ones in my left hand... so far the Gabapentin isn't doing much for my symptoms... Hope it helps you.

Eric

Hi Eric!

Thanks for responding. The nausea was bad for the first day, then my pharmacist suggested backing the Gabapentin dosage to 300mg three times per day and building up gradually. That kicked the nausea for now. I'll try to build the dosage back up in another couple of days and see how it goes. Now I'm getting "droggy" episodes myself, but they're not too bad. Funny - I never was drowsy when I was nauseated.

And unfortunately, like you, I am not really seeing any difference yet. But the doctor says it may take a while before I notice anything, so I'll keep trying.

Good luck on your treatment as well!

-Gilbert

Gilbert,

She started you on a high dose! I would imagine you would have the barfy feelings!

I am still only able to handle 300 in the morning and 600 at night, nothing at noon... or I am not really good for much...I have been taking it a year in June. We tried to increase the dose recently and it was NOT good. I am wayyy tooo out of it to work full time. Sorry I have not been around... life!

Oh and I found that in time it has helped me...I could not do without it.

Well, I am now on 600mg X 3 per day... just talked to the neurosurgeon... let us see how this plays out...

Eric

i found they made me a lil hostile and sometimes a wooshey head but the pluses outway the side effects

Well so far I am a zombie... hoping to see some results soon...

Eric

I have been on 600 MG 3x a day for 9 months or so.. at first I was groggy but now I feel or have no side effects ..

Max dose is 900 mg three times a day. My dau has been on it about 5 years. No side effects anymore for her either. sometimes she doesn't feel like it's working, but if she misses a dose, she realizes how important it is