Our group has grown past the 100 member point and we have had quite a good group of people who are sharing and encouraging... its been such a blessing! Thank you Roy!! I am not a Dr. I simply give information based on personal experience and knowledge I have gained while fighting Klippel Feil Syndrome, Von Willebrand Disease, Ehlers-Danlos Syndrome, Cervical Dystonia and Vasculitis. Five rare diseases. I hope to aim higher in fighting for awareness and treatment over a lifetime, for everyone of us. |
