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Klippel-Feil ForumsGeneral & SupportI had to share this :-)
03/26/2012 10:08 AM
grandmabrk
Posts: 269
Member

Special thanks to Lori Borgman for granting her personal permission to use " Internet Cures for the Common Curiosity " on the MDjunction Klippel Feil Syndrome Group site.

© Lori Borgman. All rights reserved.

Reprinted by permission of the author.

Internet cures for the common curiosity

Lori Borgman | Monday, March 19, 2012

A doctor friend who is a pediatrician was lamenting the state of his vocation of late.

“But being a pediatrician must make you feel so useful,” I said.“Helping all those sick children, putting all those mothers’ minds to rest.”

“It used to, but not anymore,” he said. “We doctors are slowly being replaced by the Internet. Mothers bring kids in to the office and already have their own diagnosis.”

“I understand completely,” I said. “Just last week I discovered one common ailment and five rare disorders I could have by trolling WebMD. Still, I'm sure that mothers are interested in what you have to say.”

“Not very often,” he said. “I say viral, they say bacterial. They’re medical experts. When I try to ask them where they attended medical school, they’re already on to potential side effects of possible drugs they’d like me to prescribe.”

“Tough room to play,” I said.

“Some of them even argue with me. Twenty-five years experience, but they have all the answers.”

I didn’t tell the doctor, but it’s called Motherhood by Google. Nobody needs ask a mother or grandmother about something or to rely on a thick home medical book, mothers today just Google everything. We all do.

A young mother I know recently complained of being tired.

“Baby keeping you up at night?” I asked.

“The baby slept very well,” she said. “But I had Googled ‘baby and sleep problems’ and it pulled up 19 million sites. I was up all night reading.”

Clearly, doctors are outnumbered by online experts. When you Google “baby and colic” you get 3 million sites. Your kid will be finished with colic and performing long division by the time you read through a million sites.

Searching “baby and teething” will net you 15 million sites with different opinions, salves and remedies. A Google of “baby” and the odious product they produce in their diapers pulls up a whopping 13 million sites. The kid will be potty trained (17 million sites on that topic) by the time you’ve finished sorting out the conflicting opinions.

“The Web does bring out the latent medical caregiver in us all,” I told my friend. “My personal favorites are the diagrams where you can click on the part of the body that hurts and it will list the possibilities of what may be wrong.”

“That’s not competent medical care,” he snapped. “That’s not how you diagnose. And, sometimes there are complexities.”

“But, they’ve already read about the complexities, too, haven’t they?” I ask.

“Of course,” he said.

“Doctoring is all I’ve ever done,” my friend said, rubbing his temples.

“I’m sorry,” I said. “But look at it this way; if you ever decide to quit your practice, you could start a blog. Someone might actually listen to you then.”

Reply

03/26/2012 03:37 PM  Top
jackedupinok
 
Posts: 100
Member

I like this! Told my nuero surgeon today, just tell me I'm getting better. He said Cathy you are getting better. I get to the point when all I need is a little positive reinforcment and that gets me through. Call me crazy Smile

03/26/2012 03:38 PM  Top
treblig66
treblig66Posts: 417
Group Leader

I got a big chuckle out of this one. Sounds like the conversation that I had with my general practitioner cousin this weekend. Only problem is, with KFS, we usually DO know more than the MD! Thanks for a grin!

-Gilbert

I'm not a doctor, and I don't even play one on TV. Any opinions I express are simply my own, based on the experience I've gained fighting KFS and other diseses. They should in no way be construed to constitute professional medical advice. The only medical school I ever attended was the school of hard knocks.

03/26/2012 04:07 PM  Top
lisaraman
 
Posts: 795
Member

LOL Gilbert and Cathy-we're all crazy. afterall, they do say the problems are all in your head....just talk yourself out of it.

I think the whole thing is just a pain in the neck at the end of the day...okay, bad joke. I tried.


03/26/2012 04:57 PM  Top
grandmabrk
Posts: 269
Member

Gilbert and Cathy, I so hope that the care I send with every post is a small amount of positive reinforcement. Lisa, the truth was in every word of your above post. LOL! It is a very bad joke; but one that we can relate to.

03/27/2012 06:43 AM  Top
jackedupinok
 
Posts: 100
Member

Pain in the neck, love that too!!!! It is awesome that we try to stay well informed and when we see regular Drs they don't have a clue, then they might try to learn about it for your next visit. I have learned over many years that you can tell them about your conditions but most are overwelmed and very happy if you already have specialists. I had a hard time finding anyone to be just my regular dr and I had to cry to get the one I have now to take me as a patient. He has his job which is to bug me to go get a mamogram, pap,colonoscopy ect Smile Things that I didn't think important while trying to recover from surgery but he made the apmnts and I went. He has his purpose and I am grateful. By the way I have been down in the dumps, just tired of being ill. The lighter stuff makes me smile, Thanks guysWink

03/29/2012 08:10 PM  Top
TyneWon
TyneWonPosts: 10
New Member

Ty for this post; Loved it as I see my Daughter running to the net every time the little ones get sick + experienced her suspecting so many 'impossible ailments' bloom from a fever + sore throat or normal 'naughty' childhood behavior. Such is life these days, however sadly treblig66 is spot on, if we weren't trolling the net re: info on our own condition we'd get very little help elsewhere. At least we understand that everyone is different when it comes to KFS. Hope you're all having a great day Smile

Post edited by: TyneWon, at: 03/29/2012 08:11 PM

Post edited by: TyneWon, at: 03/29/2012 08:11 PM


03/30/2012 08:12 AM  Top
Rosie88
Rosie88Posts: 694
Member
I'm an Advocate

This was good, thanks Tyne!

I will say, it was so refreshing at my Dr Visit in Madison this week, a very caring Dr sat down and first said " I am sorry this has been going on for you" and followed it with " Please tell me what YOU think is going on here" VERY refreshing... and started off a great conversation and thoughts on what to do about this pain in the neck!

I am not a Dr. I simply give information based on personal experience and knowledge I have gained while fighting Klippel Feil Syndrome, Von Willebrand Disease, Ehlers-Danlos Syndrome, Cervical Dystonia and Vasculitis. Five rare diseases. I hope to aim higher in fighting for awareness and treatment over a lifetime, for everyone of us.

Previous discussions I participated in:
Heart Problems Redux
New member from Finland
im new

03/30/2012 05:00 PM  Top
amjolley
amjolley
 
Posts: 73
Member

Love to hear that Rosie!
Allison

Mom to Tyler(7), Tanner(4) and Thomas (24 mos)
http://thomasjolleyds.blogspot.com

03/30/2012 05:21 PM  Top
TyneWon
TyneWonPosts: 10
New Member

Now that's the way a Dr should be Rosie. So glad you've finally found one that's willing to listen.
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