|
jackedupinok Posts: 100
Member
|
It is Cerebral spinal fluid. It flows around your brain and spinal cord everytime your heart beats. Due to my many spinal issues KFS being one things were in the way of this fluid flowing in amy normal way at all. I had bone, brain cysts blah blah making mine put preasure on nerves and brain and causing more damage the less it flowed. They can check the flow by doing a cine mri. So my doc 1 1/2 tear ago detethered my attached spinal cord whic h gave me releif actually of neck pain. Just for a while.Becaause kfs degenerates you more quickly that average (less parts to move just wear out faster)I am falling apart in my latter 40s. The detethering of the cord did make my chiari shrink but C4+5 were compromising flow also. So, they cracked the back of my neck, zapped my falling lower cerebellar tonsils shaved off the bones that were on the cord,removed some cysts and let the preasure flow in somewhat of a normal way. They wont do another mri for at least 6 months to give things a chance to heal. Its funny though cuz you get used to living a certain way and then you get a change and you have a hard time not falling off the tiolet seat!! No really I could tell the nerve pain was gone the next day. I am not going to lie. The first day was hell no morphine no nothing took the pain away, I told my husband I wanted to die more than once. This is not a surgery they do just because they can. I was told I was tough and could handle it, and to hand around and watch my kids grow up I will endure whatever it takes. I will probably have to do it again and I will be ok. I have to be. Gotta lay down for a bit my neck is very stiffand of course I have done way more than I should being 1 week post op. Good wishes to all Cathy |
Hey everyone, home from the hospital, 3 days in icu and 2 on the nuero ward. My surgery went very well pain in th neck is not so hot but my arms and other nerves pain is amazingly better. Love my doc cant say enough good about him or his team. Cant be on here long hurts to look down and let me tell you if you think its hard to function with limited csf flow you should try to function with good flow after its funny to watch. I was missing my mouth with a straw by inches and cant walk straight to save my a** but that is getting better. I will probably at some tome have to have this done again but will know what to expect and I wouldnt wish the first day on my worst enemy. Puking ( which comes from the part of the brain they work on with your head split open is not a fun thing)anyway things can always be worse. Look for things to be better in you life weather its thru friends family god or whatever inspires you and makes you feel at peace. I have to feel that I was somehow given this task of poor health for a reason weather its because I can take it or I am here to try to help others. Remember as bad as you feel there is always someone worse try to have a wonderfull holiday season, I wish you all well and hope you can have at least a day of inner peace and harmony even if your body tells you other wise. Have to go cant stop crying its the damn emotions that get the best of me. Cathy
