MDJunction - People Helping People
 

Why wear a ribbon?

 
"No one in my family has died of lung cancer, my stepfather smoked and had throat..." (girlzero0)

MDJunction to me

MissNikkiAnn"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
of people who understand the name and the symptoms/issues that come with it.
MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction.
" (MissNikkiAnn)

more testimonials
Klippel-Feil Syndrome Support Group
A community of patients, family members and friends dedicated to dealing with Klippel-Feil Syndrome, together.
Join This Group
Group Home   Forums   Articles   Members (268)   Diaries   Videos   Leaders   Guidelines
Klippel-Feil Group RSS Feed
Klippel-Feil ForumsGeneral & SupportKFS Thanksgiving
11/25/2010 08:07 AM
Rosie88
Rosie88Posts: 694
Member
I'm an Advocate

Hello everyone! Wishing you each a Happy Thanksgiving Day... and hoping that we can all find many things we are thankful for! For one, I am thankful for this group!!

My mom spent yesterday making Thanksgiving dinner, and is bringing it all to me, because driving has been causing problems lately for me. It will just be the two of us. I am making the green bean casserole and the snacks. I am so thankful for her, and for all of you moms and dads who are going the extra mile for your kids while dealing with KFS!

Lisa, special thanks to you... you are excellent.

Many blessings for you all.

xoxo

Rosie

I am not a Dr. I simply give information based on personal experience and knowledge I have gained while fighting Klippel Feil Syndrome, Von Willebrand Disease, Ehlers-Danlos Syndrome, Cervical Dystonia and Vasculitis. Five rare diseases. I hope to aim higher in fighting for awareness and treatment over a lifetime, for everyone of us.
Reply

11/25/2010 10:53 AM  Top
lisaraman
 
Posts: 795
Member

HI Rosie- Happy thanskgiving to you too! Your mom is a treasure and I hope the 2 of you enjoy your day. Be pampered and enjoy the relaxation. That is what it's all about. And to everyone else in the group, happy thanksgiving to you all. I hope you are with your families and having a pain free, carefree holiday!1 Best, Lisa

Previous discussions I participated in:
research update
Doctors for KFS
My 4 year old son
Reply

Health Topics: Klippel feil
Share this discussion with your friends:
Members who viewed this page also read:

Klippel-FeilKlippel-Feil ForumsGeneral & SupportKFS Thanksgiving

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved