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Kallmann Syndrome Support Group
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Kallmann ForumsIntroductions & Personal StoriesHello everybody, I'm Rhinozeus
10/19/2010 03:11 PM
Rhinozeus
Posts: 1
New Member

I'm 26 years old man from Finland. I have Kallmann's Syndrome and it was diagnosed this year 2010. I'm here for looking some support, help and new friends who have the same syndrome.

The symptoms of Kallmann have always been very clear: I have cleft lip and palate, I have not the sense of smell at all and I had some starting problems with my puberty when I was a teenager. I still look and sound very young and that's the reason why I asked help from the Doctors this year. Now I get testosterone vaccine every 3-4 weeks and I think it help me.

But still I feel myself sometimes very sad, I feel I'm some kind of freak or clown. I feel myself lonely and depressed. I don't want to talk about this syndrome with my friends here in Finland, maybe I scare. I hope I can share here the feelings and the experiences with you all. I'm glad I'm here now.

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07/12/2011 07:33 PM  Top
ajacketsfan
Posts: 10
New Member

You aren't a freak, or a clown. I know how you feel, it's hard to look and sound very young. Glad to talk anytime.

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