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07/28/2009 08:25 PM

Treatment

bits
bits  
Posts: 10865
VIP Member

Has anyone ever been treated with DMSO? It is a treatment that consists of washing the bladder with DMSO, done at the uro's office, weekly for a period of six weeks?

If so, what were your results?

Hugs

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07/28/2009 08:44 PM
tracy6878
tracy6878  
Posts: 575
VIP Member

no...i haven't the dr wont do any of those things for me due to an allergy i have, which is so totally lame...have you tried it? are you thinking of trying it?

07/28/2009 08:59 PM
bits
bits  
Posts: 10865
VIP Member

Tracy

Twenty years ago, I was dxed with IC. It was bad. The constant pain, the foods that would cause it to hurt even more.

About five years into it, nothing working, my doc suggested an experimental treatment (I am sure it is no longer experimental today).

I agreed.

The treatment consisted of going to my uro weekly and letting him inject DMSO into my bladder. I held it for about 30 mins before voiding.

It was only a little painful.

The side effects of this treatment was the smell. Your pores would excrete the med thus causing a terrible smell. Usually it would be a garlic smell. I, however was one of the many that smelled like strong urine.

No amount of bathing or perfume would hide it. My family couldn't stand to be in a car with me.

I did 3 treatments and stopped because of the embaressing smell.

It didn't work because I needed to do 6.

About a month later, I decided smell or no smell I want to get better.

So, I did 6 treatments in 6 weeks.

It worked.

After 5 years the uro declared me cured.

That has been at least 15 years or more since I had IC.

This treatment did not work for all, but did for some. I was one of the "some" it worked for.

Make no mistake, I did have IC. My bladder was so scarred and had tiny cuts thruout it. It was a mess.

I was just wondering if it is still used.

Hugs to all.


07/28/2009 09:15 PM
AutumnSunset
AutumnSunset  
Posts: 1262
Senior Member

Hi Bits, Good to see you posting here. DMSO is still listed as a treatment for IC. http://nfa.convio.net/site/News2?page=NewsArticle&id=7035

I'm still in the process of a diagnosis for my bladder pain, so I haven't had any type treatment yet.)

Tracy, I believe you said that you have a sulfa drug allergy. DMSO is Dimethyl sulfoxide, so that could be the reason your doctor doesn't want to use it on you.


07/29/2009 01:45 PM
tracy6878
tracy6878  
Posts: 575
VIP Member

i believe that is why as well...the dr at hershey medical center, the supposed uber specialist told me it didnt have sulfa in it...i refuse to see them now...bits, it is good to get your point of view over here too!!!

07/29/2009 02:02 PM
bits
bits  
Posts: 10865
VIP Member

I just wanted to share my experiences with you. Although, I do not have IC anymore, I have many, many UTIs.

I am considered a complicated case because I have allergies to all antibiotics except Levaquin and of "the big guns".

At the time I was doing the treatment it was experimental.

I am suprised that it would not be suggested today.

Hope all are feeling well or better.

Hugs


07/29/2009 03:52 PM
Alisha2086
Alisha2086  
Posts: 160
Member

I have been treated with DMSO. It worked very well for me and I actually was virtually flare free for 2 yrs. I started flaring again 2 months ago. I will say being catherized every week stretched out my urethra and I became allergic to latex so my uro had to start using a plastic catheter. I would sit w/ the medicine in my bladder for about 30-45mins. I would bring books, my mp3 player, etc. I recommend bringing something to entertain you. I will say that as time goes by you will get use to being cath but it still hurts.

08/01/2009 03:28 AM
bits
bits  
Posts: 10865
VIP Member

I am so glad I never had to cath myself.

Alisha, can you do the treatments again?

My heart goes out to all of you.

Hugs


08/01/2009 12:06 PM
Alisha2086
Alisha2086  
Posts: 160
Member

I can do the DMSO again. But now my ic is under control and my fibro is acting up a little.

08/01/2009 10:41 PM
bits
bits  
Posts: 10865
VIP Member

I remember it was experimental at the time I did it. It was and still used on horses legs when they are sore.

My uro told me how it was found to be effective on hymans.

He said farmers or horse owners that had arthritis in their hands, found after treating their horses the arthritis became much better or went away.

IC is considered to be a type arthritis in the bladder. Have you heard this?

Hugs

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