MDJunction - People Helping People
 

Why wear a ribbon?

 
"One of my best friends has Spina Bifida and i have seen it negatively affect his..." (JennM)

MDJunction to me

puppylover"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)

more testimonials
Interstitial Cystitis Support Group
A community of patients, family members and friends dedicated to dealing with Interstitial Cystitis, together.
Join This Group
Group Home   Forums   Articles   Members (223)   Diaries   Videos   Leaders   Guidelines
IC Group RSS Feed
IC ForumsGeneral & Supportflare triggers!
10/12/2011 05:27 AM
blondee8257
blondee8257
 
Posts: 1119
Group Leader
I'm an Advocate

Typical Flare Triggers

(1) DIET - The most common IC flares are diet induced. There is nothing sadder than talking with a patient, crying in pain, who has never been told about diet. One IC patient called our office quite desperate, bemoaning the fact that no therapy had ever helped her. She later admitted that she drank a six-pack of ginger ale each day. In our opinion, few therapies would work when various irritants are assaulting the bladder, day after day.

(2) HORMONES - The bladder is extremely sensitive to the hormone changes that occur each month during the menstrual cycle. However, each patient may respond differently to hormones. Some patients flare when their progesterone levels are higher, while others flare when their estrogen levels are higher. Many women struggle with an IC flare on the day that they ovulate and a few days before their period. The good news is that these hormone-induced flares are often predictable and short term. One thing that you might find helpful is to do avoiding diary for a few months and also track your menstrual cycle. This will help you determine if you are having any hormone induced flares and will also help you see that they can be very short term and often not worth worrying about.

(3) VIBRATION - If you had a broken leg, would it hurt if you shook it up and down? Well, yeah! When an IC bladder is jarred or bounced around it can hurt, thus driving, flying and traveling are well known IC triggers. In fact, one research study found that 50% of all IC patients had pain while driving or riding in a car. The culprit is the vibration of the car on the bladder and pelvis. Because the bladder and surrounding muscles are already so sensitized, jarring and bouncing over roads can create more irritation and also trigger painful muscle spasms. Thus, IC patients frequently report that they cannot drive long distances without experiencing great discomfort. If you’re in an IC flare, it’s best to limit car travel to short distances.

(4) STRESS - Does stress cause IC? Not that we’re aware of but it can certainly trigger an IC flare. IC patients frequently report that their symptoms worsen during periods of high physical or emotional stress. Consider the fact that when patients get very cold, they often have more bladder symptoms. Emotional stress creates similar reactions in the bladder through no fault of the patient. In the past few years, several IC researchers have focused on how nerves in the spinal cord and bladder react in highly stressful situations. They have found that intense stress causes an euroendocrine response throughout the body, brain, spinal cord and that appears to be contributing to our bladder symptoms and pain levels.

(5) CHEMICAL EXPOSURE - Do you have a very sensitive sense of smell?? If so, you're not alone. Many IC patients seem to have varying levels of sensitivity to smells, sounds and, yes, chemicals. IC patients often report that various chemical exposures and/or medications can trigger an IC flare. The usual culprits are soaps, detergents and laundry products that leave an irritating chemical film in our clothing or skin that can irritate our sensitive tissues. Sometimes harsh smells in the home, such as cleansers, can trigger discomfort.

(6) VITAMINS & SUPPLEMENTS - Visit any IC support group and you’ll find that most patients can’t tolerate multivitamins of any type. Multivitamins are well known IC triggers because they contain Vitamins C and B6, both infamous for irritating the bladder and creating discomfort. Patients often do better when taking individua lvitamins and/or supplements, such as a simple Calcium Citrate pill.

(7) SEX & INTIMACY - A number of IC patients report that sexual intercourse can trigger an IC flare. Men with IC may experience a searing pain at the moment of orgasm. Women with IC often feel their worst 24-48 hours after intercourse, with increased levels of frequency, urgency or pain. Men and women can also struggle with intense pelvic floor muscle spasms.

(8) EXERCISE - Exercise, particularly workouts that involve the pelvic area, can trigger an IC flare. Bicycle seats put unusually high pressure on the pelvic floor muscles, thus exacerbating ICsymptoms. Other patients have reported that workouts that jar the pelvis, such as running or stair master, can provoke pain. Exercise is possible as an IC patient, but it’svery important to pace yourself and pick your exercises carefully.

many hugs,
blondee

'To get something you never had, you have to do something you never did.' When God takes something from your grasp, He's not punishing you, but merely opening your hands to receive something better. 'The will of God will never take you where the Grace of God will not protect you.'

I am not a doctor, nurse, nurse practitioner or anyone in the medical field. i can only share my experiences dealing w/my pain!
Reply

10/12/2011 05:45 PM  Top
AutumnSunset
AutumnSunset
 
Posts: 1253
Senior Member

Thanks, Blondee, for this great info!! I was not aware of some of these triggers for ic; but many of these triggers are/were triggers for my migraines! One thing that I have never noticed any problems with is multi-vitamins. I've been taking those for YEARS, and never noticed any side effects/triggers. I do take Shaklee, which may be milder than other multivitamins. I really appreciate you posting this.
Gentle Hugs,
Carla

Share a smile and a kind word, and make someone's day better.

Any advice that I share is only that - my advice. I am not a doctor or expert in anything, except maybe experiencing pain. My "words of wisdom" come from my experiences or my research only.

10/14/2011 04:50 AM  Top
blondee8257
blondee8257
 
Posts: 1119
Group Leader
I'm an Advocate

thnks autumn...we have a few new members to our little group that i thought might like to read them... who am i kidding i need reminders sometimes myself!
many hugs,
blondee

'To get something you never had, you have to do something you never did.' When God takes something from your grasp, He's not punishing you, but merely opening your hands to receive something better. 'The will of God will never take you where the Grace of God will not protect you.'

I am not a doctor, nurse, nurse practitioner or anyone in the medical field. i can only share my experiences dealing w/my pain!

Previous discussions I participated in:
beach therapy
ic and meds
Hi Everyone

10/17/2011 04:38 AM  Top
shamarie6
shamarie6
 
Posts: 2805
VIP Member
I'm an Advocate

I think we all need reminders. I know that I sure do! LOL! Thanks for posting! I for some reason, had forgotten why multivitamins weren't necessarily good for IC. Laughing
My views & suggestions are from my own experience or from research that I have conducted on my own. They ARE NOT to be used as a replacement for a professional opinion, so please take them as just that.
FAITH:
Faith is seeing light with your heart
when your eyes see only darkness.

You never know how STRONG you are...
Until being strong is the ONLY choice you have.

You can't have patience with others until you can have patience with yourself.

10/19/2011 02:57 PM  Top
nkier

This information is very interesting. I wanted to share information about a gentle exercise video I have which I heard of from the IC Network but ended up purchasing through Amazon with no shipping charge. It is a simple Pilates exercise which I can do a few days a week until my ribcage went wild on me. A few parts are more difficult and can be passed by. It also can be broken up and do one section one day and another one a different day. It has an extremely easy one for "those rough days" we all can have. This is done while sitting in a chair. This video is Pilates for Women with Pelvic Pain. If anyone needs me to double check the name, please feel feel to ask. I do enjoy doing this and many of the exercises are only 5 repetitions and does not jog my bladder. I AM EXTREMELY SENSITIVE an can only be up for 15 - 30 minutes and then I'm down again. I used to be a dancer so it makes me feel "normal" for some time until I stand up. LOL Silly I do love it and I am going to give it a try again but my ribcage woke me up this morning totally flared up to an excruciating point. I am in my new recliner and loving it!!!!! Smile
Reply

Share this discussion with your friends:
Members who viewed this page also read:

ICIC ForumsGeneral & Supportflare triggers!

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved