Hypothyroidism Support Group

After a year and a half of levothyroxine sometimes working I'm feeling frustrated AGAIN! My TSH goes down for a while, I feel better, then it goes back up and the doc increases the dose. My last labs were confusing at best with a high T4 Free, but a high TSH and a low-normal T3Free.

After being on the newest increased dose of levo for almost five weeks I am still not feeling any better. I'm wondering if something else needs to happen. Suggestions?

all too well do i know the feelings of frustration.

the last blood test a month ago -- the tsh had dropped down to 8 while free t4 was steady at 9

this last blood test -- tsh is back up to 14 and free t4 has dropped to 5.

one begins to feel like a yo you.

i have a good crew -- an endocrinologist, my allergy doctor and a naturopath. hopefully with those three something will stabilize one day.

try to stay cheerful.

blessings to all.

Have you been tested for Hashimoto's? Thyroid medication didn't help me at all, and at times made me feel worse. Then I read Kharrazian's book. I'm not on any drugs now and feel much better.

i spent the last 5 or more years feeling drained, not understanding why,among other problems like thinning hair, facial hair (started around age 19 !), psoriasis (started in 30s i think), weight gain (overweight since around age 13 but more and more over the years), depression, irregular periods (all my life, heavy at times), restless, difficulty concentrating, and more! my dr told me i am very complex cuz i have so many problems! but yet there was no explanation!! til last week they called and said my thyroid test came back underactive! uuugh~! relief in sight??? or more horror? so far more horror! i requested to try armour.. 1st day still really tired so i decided to try it under my toungue the 2nd day after reading online forum that it did someone wonders who did that! not for me, made me worse, slept all day and night too! told dr and she switched me to levothyroxine 25 mcg once a day in the am, so far i am still tired every day, i could just sleep n sleep, dr said thats normal til my body gets adjusted to it, is this true??? i hate to waste anymore time as i already feel like i have lost a big part of my life.. i want to feel normal and well again! i dont know what to do, any suggestions???

Post edited by: ch3rry, at: 06/18/2012 06:10 PM

Hi Ch3rry

I understand how it feels wanting to sleep all the time. You remind me of my old days of hypothyroid. I like the way you advocate yourself with so much patience and determination to get better.

With your many problems, it may affect the ability of you body to cope with the thyroid issue faster. Keep strong, emotionally and mentally. Talking in the forum here can help us to feel better. It really need a lot of patience. Hugs.

Thank you so much for your kind words, my husband seems to think i am pretending to be like this so i can be lazy, something i never was but feel like i am now :o( Thats the worst part of it i think.. but now i seem to be having a reaction to the sinthroid.. 8 days on it and every day seems to get worse.. i feel even more tired than before i was diagnosed, gaining more weight, swollen body parts that hurt alot, joints feel worse than ever.. i guess i will call dr in the morning.. i so much wanted a nice summer but it doesnt look like this year~!

Anyone know of other forums like this one with more to read?

Yes, please call the doc in the morning. I'm sorry you're feeling so down now.

((((( hugs))))))))

p/s : I've PM you.

dr herself finally calls me back to tell me to stop taking the thyroxine, lol, i had stopped already, i wanted to know what to do next but she dont have a clue, said she would keep an eye on my blood work and if need be she will send me to an endocronologist, lol again cuz i think i have needed that for a very long time! i spend my life tired all the time, too tired to live right! but i cant see the endo unless she decides i need one! :"(

I was on a page somewhere online and everyone was complaining about how the reformulated armour is not as good. i have to have T3 +T4 in my pills, or I am not getting enough hormone into my cells. I really need to save money, so I asked my doc if there is anything cheaper, and she said that with my history, NO, I need the compounded formula. I have done much better on it than I've ever done, so I guess I'll have to eat the cost?

Hi Ch3rry ...Am happy for you...I really hope you can make it to endo. They don't know what a relief it can be to be able to talk to people who really knows what we're going through.

Hi Sswelteer....Yeah..we have to eat the cost. I've stopped taking the meds once, and it's not something nice to do. I hv to pay for that too (zombie look-alike).

Take care to you both.