Hypothyroidism Support Group

I am hypothyroid and I have always struggled with joint and muscle pain and for a long time I have had days were I get this weird feeling in my fingers. It bothers me to touch anything like, hair or even a couch because the fibers bother me, I don't know if it's like hyperstimulation to touch or even if there is a better way to describe it. It makes it painful almost to even wash my hands. It gets even weirder because when it happens I get a weird feeling in my teeth and I don't know how to describe it, it's just there. I also have headaches on a daily basis, sometimes they get so bad I can't move without being in agony and feeling like i will pass out. Lately my lips have been going numb or tingly too and my endo ordered a calcium test to see if I have a deficiency. Does any of this hound like Fibromyalgia to anyone? I am not familiar with it or know anyone that has been diagnosed. I've been told it's pain associated with depression but I am allergic to Cymbalta and can't take anything else at this time because of my heart condition. I used to be very active but now everything just hurts do anything, stairs, bending over, even typing hurts my hands. I get cramps really easily... Sound familiar to anyone?

Thanks,

hypoIvy

Post edited by: hypoivy, at: 05/03/2009 02:16 PM

Hi Hypoivy I'm Lisa and I also have Hashimotos and fibro among other health issues. Very often thyroid disease and fibro seem to go together. Have you asked your dr about the possibility of fibro?

But to answer your question yes I can relate to your constant pain, everything hurts. I'm in the fibro group also and I have found a lot of info on there just reading through the forums. I'm also in the goiter group. Do you have a goiter? I hope this helps some what let me know what you find out OK?

Hugs And Love

Lisa

Post edited by: bluefibroangel, at: 05/03/2009 07:41 PM

I do have a goiter, I hate that word! It drives me nuts, besides not being very attractive it makes it hard to swallow my pills and always feels like its on fire. My doc said it hasn't been long enough for the meds to help yet and he is hoping it shrinks down or I will be looking at surgery. Is your noticeable? if I don't point it out people say they don't notice, I guess they just think I have a thick neck. I joined the goiter group as well, thanks for your reply,

hypoIvy

Yes mine is noticeable and I always feel like i have something stuck in my throat. I also have nodules on my goiter so my doc has done a biopsy once and it was benign thank God. But I now have to have one done every 6 months and their very painful. Sometimes my goiter is painful,but not always.

I cant really say mine has shrunk, it feels like it's gotten bigger to me. And yea surgery might be in my future as well.

Have you joined the fibro group, there are really a lot of nice people there to talk to I love it.

Well Ivy I look forward to knowing you better keep me posted and we can compare goiters in the goiter group lol.

Love And Hugs

Lisa

P.S. Please do ask your doc if you have fibro, threr are a lot of natural supplements you can try for pain also.

hypoivy ~ I am terribly sensitive to textures, I always have been a little bit but never like this. For the numb or tingly lips, that does sound like a Calcium or Parathyroid issue, you parathyroid regulates you calcium. I had a goiter too, it was found after having a CT scan. I had a biopsy that came back strange so, I had surgery to confirm what it was. It was follicular thyroid cancer, one of the easiest to treat. After the thyroidectomy, my parathyroid quit working. The best form or calcium that I have found to help is Calcium Citrate.

Mandy

I have had lots of problems with joint pain/stiffness and other symptoms since last August. Some days it's so bad that it's all I can do to walk. Stairs are a real problem for me. I have problems opening bottles (1 and 2 liters, milk, medicine, basically anything that involves me having to unscrew the cap). I'm extremely fatigued, no energy, feel like I've run a marathon. I never feel like I've gotten enough sleep and could sleep longer even after 8 hours of sleep at night.

I am waiting on the results for RA and lupus. They couldn't refer me to a rheumatologist until I had those tests (my previous doctor wouldn't order them) but told me I had fibromyalgia. I hate not knowing what is going on.

I have an Endo appointment on the 3rd next month. What should I say to the doctor?? I also want to bring up adrenal fatigue because I believe I suffer from that also. Since being diagnosed with hypothyroidism I have constantly been sick with colds and soar throats and other things. I have literally been sick every week or 2. It's driving me crazy! Is this something that comes with all of this?

huskylover ~ It sounds to me like fibro. I can't get anything open I always have to get my son or my husband to open things for me I also had to start getting non-childproof caps on my meds. I would be in trouble if I still had little ones running around. I know about not knowing what "it" is but even after you find out sometimes you still have the same problems that you did before... It is good to know the things that you don't have.

hypoivy ~ Just ask lots and lots of questions. Write them down so you can check them off as they are answered, sometimes doctors start in on something else and then I forget what I really wanted to ask.

Mandy

Hey Ivy...I'm new here I just joined today.

I joined to learn more like you..and also to spread what I have learned to help others...because it is seriously insane how many people have multiple health problems. I am 20 years old! Doctors have told me since I was a teen what to do and not to do and they have more often than not been wrong and are still puzzled by my case.

AS far as what I've learned about fibromayalgia:

1) depending on who you go to some will diagnose you with it..others think it's not a "real" condition, and still others think that it exists but it is a name for something that they can't find out what the real problem is (which is in my case).

2) have you tried a gluten free/casein free/ or both diet? I have heard many people tell me that it has completely cured them of their MS, fibromayalgia, etc. symptoms.

3) Have you tried natural cortisol supplement? It has helped me tremendously with my pains and aches..i guess our thyroid medication depletes us of this and if we are low to begin with it can cause so many problems. look into this. mine is called isocort

4) also recently I have been taking all natural 100% plant based supplements by a company called MAnnatech. They have worked miracles for many people I know, and have heard of so I thought what the heck do i have to lose I'll give it a shot. Well ive been taking them for a month not even religiously and have noticed a HUGE improvement in my mood, headaches (which used to be migraines), and energy level! I can actually stay awake the whole day with out literally falling asleep as I am doing things.

look up the product studies at www.mannatechscience.org

email me at farewelxophelia@hotmail.com

with any questions or discoveries!~

Good luck!

<3

Hereliesboots,

Welcome to the forum. It was interesting reading all you had to say. Myself I feel great on my small dose of Levothyroxine. I am also afraid to change it. I went the path of natural "meds" for my bipolar disorder and that was a desaster. Thanks though for your info. I am sure many will benefit from your knowledge. Again, Weclome to the group.