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Stop being scared



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02/11/2008 21:32
amberose
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I can not belive there are not more people here supporting others with HIV or people with HIV not supporting others It seems to me to this day people are running from this like it is a bad epidemic and you'll catch it if someone coughs on you. That my people is how it is spreading, FEAR, non HIV/AIDS educated people who are too scared about the illness to find out about it, and learn how to stop the spread.

Everytime I find a friend or family memeber freaking out I was in a serodiscordant relationship, I have to educate them on it. Why, because they really don't know jack about it. I find most people immediantly asking me wided eye'd how come I don't have it, this actually isn't a easy desease to spread like herpes, gonnara, or clymiddia. But don't think your immune!

I see my parents generation starting to contract this now more then my generation, like my father for example, when he went to school, AIDS wasn't around and there was no education on it, I see my mother having a one night stand and I freak out at her, why because it is out there.

People think that people with HIV are dying from a desaese but in fact they are now living with an illness. I don't know how they are educating in schools today but when I was in grade school in the 80's it was still new, and I don't think I even got the greatest education on it.

My father has full blown aids and will tell a stranger about it, it does not scare him and he is very uneducated about it, I still teach him stuff

My ex husband has HIV, when we started dating we did not know and had unprotected sex starting about 5 months into the relationship, I was very lucky to have not gotten, as we learned out about a month later he had it. I got educatied, and we had a serodiscordant healthy relationship.. I never got it. We would go together to support groups and classes, I think it is best for everyone with/without and even people who dont know anyone with it to get all the education they can about this.

It is an illness like diabetis, you have to take care of your self a whole lot better then before and if your lucky you may never have to even take meds, my ex husband has had it for 6 years and has not had to take a med yet, his viral load is very low and CD4 cell count is about 300 to 450 most the time, once his load went up to almost 75,000 they thought he would need to go on meds, but he was under stress not eating right or working out, he was starting to slip, he turned back around picked himself up and 3 months later, had a viral load undectable again!

Now my dad was not so fortunate. He didn't find out til he had full blown aids, yet 5 years prior he had a test and was negitive, hmmm how in 5 years did my dad get full blown AIDS??? and my ex husband went 6 years and no meds. My ex husband was infected one time and one time only! very important, very very important, why well once you contract HIV, if you don't find out soon enough and stay with the same partner you pass it back and forth mutating it, or just mulitplying it (sorry not a DR hard to explain) my dad was with the same women for a few years... but I think he got it from somewhere else before meeting her... once he passed it to her, it was on, they continued passing it til my dad got sick first.

Now my exhusband only had one contact with it... so for anyone out there who is HIV and has an HIV partner, stay protected!!! you may think, we both have it, it is not a big deal, YES IT IS!

I have soooo much more I want to say but it seems there are not many in this forum, well not very active forum, I hope more people stop being in feart of this and come to a forum like this for support and education, you live in the dark and your gonna get it!

Tooo many of my friends get mad when I preach this to them but to this day the run around like there is no such thing as AIDS. I will feel very sorry if one person I have preached to happens to get this, they will wish they had listen to me in the past.

My dad talks freely about it, but my ex husband wouldn't even tell his family for years like he was hiding in the closet. He won't date, I tell him it's ok to date, but not to get your hopes up, he is afraid of having to tell anyone and afaid of the rejection. I am understanding of this but if you can now live the rest of your life with this illness, why not have a life, and stop hiding please

When I first found out he had it I was wondwering if there were groups like this to join, for help for answers, there are medical forums where you can ask doctors questions, but what about forums like this where people can support each other

I hope this touchs someone, I hope this helps someone

BTW my dad had Hep C to boot, he is going to die from the psorosis of the liver, not from HIV or AIDS. it is an immune system illness people if it werent for the hep C my dad maybe would have the rest of his life ahead of him. Like my ex husband.

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