http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/feed http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sun, 19 May 2013 05:49:56 -0700 http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/general-support/2505520-hippellindau-disease-videos-on-mdjunction#2517822 Hi - it's me again... I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that! and another (not related) topic...Two weeks ago we added to the (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!! CU roy... Wed, 09 Mar 2011 03:22:48 -0800 http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/general-support/17676-welcome-to-the-hippellindau-disease-support-group#17676 Hello, Welcome to the Hippel-Lindau Disease Support Group. This Support Group is a comfort place for family members and friends to share and ask questions regarding Hippel-Lindau. Feel free to introduce yourself, ask your questions and be around people who are in your spot. We'll be happy to hear your thoughts on how to make this better. Best, roy... Wed, 21 Nov 2007 03:17:43 -0800 http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/general-support/17675-making-the-most-of-the-hippellindau-disease-support-group-experience#17675 The Hippel-Lindau Disease Support Group is full of ways to interact and share your knowledge and experience. It's your chance to be around people who are dealing with the same issues as you do and understand you best. The Hippel-Lindau Disease Support Group has 3 main discussion topics. You can explore them by clicking the link on the left. As this group just started we'll need people to jump start it and make it as productive as other groups on this site are. To get an idea you can visit the... Wed, 21 Nov 2007 03:17:42 -0800 http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/general-support/17674-how-to-join-the-hippellindau-disease-support-group#17674 OK. The No. 1 of all No.1 questions ;-) "I can't seem to be able to respond to a post", "why can't I start a new discussion?". At the top right of any page in the support group you'll see a button for "join this group". Once you press it, you're automatically a group member and able to join the discussions. Try it ;-) now! Waiting for No.2, Any more questions? Best, Alon... Wed, 21 Nov 2007 03:17:40 -0800 http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/introductions-personal-stories/17673-technical-stuff-related-to-the-hippellindau-support-group#17673 Hi , I'm Alon, nice to meet you all ;-) I'm in charge of all the technical stuff around the site and the support group. If you have any problem, want to ask a technical question or would like to suggest a new addition to the Hippel-Lindau group – please contact me (via PM). I hope to CU here a lot. Sincerely, Alon... Wed, 21 Nov 2007 03:17:39 -0800 http://www.mdjunction.com/forums/hippel-lindau-disease-discussions/introductions-personal-stories/17672-hello-hippellindau-disease-support-group-im-roy#17672 Hello, My name is Roy. Alon and I run MDJunction. We hope that the Hippel-Lindau Disease Support Group will grow into a real meaningful place for all of you, as other groups in MDJunction are (you can see the as an example). We are here to help in any way we can. Enjoy, roy... Wed, 21 Nov 2007 03:17:38 -0800