Hidradenitis Suppurativa Support Group

Hello all,

I was reading back through all the posts this evening, and came upon Shutterbugs response to my being adopted and not knowing my family history.

I learned just a few days ago, that my 14 year old son has HS. He asked me what the lumps were under his arms, and told me he has them in his groin area too. It was all I could do not to cry. I really had hoped that he would NOT get HS, and since he has already gone through puberty, I thought he might have been safe (I got my first symptoms of HS years before puberty).

I am making an appt. with my dermatologist for him to see if he can help him at all. I have heard men get this disease much more severely than women. I am trying to be positive, but since my son knows I have this, he made a comment that his underarms will probably turn 'black' too, like mine.

Please say a prayer for him and I, thank you,

Karyn

Karyn I am really sorry that your son is showing signs of HS. I cannot imagine how you feel.

For your HS you have taken a very active role in managing it and keeping your body strong. Your son will have you as a role model to show him the same.

Right now he will be going through a barrage of emotions. At least you are there for him.

I will say a prayer for him and you. I know that you will continue to be the strong woman you are, for both of you.

**I will copy that link for the males and put it in an easy to reach place here in the forum.

Big soft hugs.

wow, hsshutterbug...you're good i like the diagram link.

Hi everyone! I am fairly new to the site and have neglected taking advantage of it. But this evening like piscespainterI have spent some time reading other postings and discussions and they have been informative and a source of strength for me. To see how strong all of you are encourages me, and helps me to know I can deal with this too. This last year I have taken a more active role in trying to manage the HS. Reading how open and honest all of you are makes me want to do even more to manage the HS. I don't feel so hopeless about it. Your openess and honesty helps me to ask for advice about a subject I can't ask just anyone. But I know all of you understand. My question is how to bring the HS up in a new relationship that I know is headed toward physical intimacy? Or do I bring it up at all, especially if I'm in a time of minimal or no flare-ups and it isn't so obvious, except for the scarring.I would very much appreciate any advice anyone could give me on this. A big thanks to all of you for being here! All of you are in my prayers. pomiju

Hello pomiju,

A very good question you have posted.

Since you interact with this person, you will be best to judge when you can let them know about HS.

I know when the bumpies are back, I cannot begin to communicate properly. So when things are quiet, it might be a good time. I would think eventually he will see your body and the scarring.

But having a dialogue with them that consists of what it does to you daily/weekly/mthly, may show that person how really strong you are as an individual. Also let that person know how you feel very confident about managing your illness.

Until you can find the right words,try talking it out in front of a mirror if needed.

I have said this before and I will say it again, if that person truly cares for you they will accept you, as a whole. If they don't stick around then they did you a favor. Saving you from weeding out those that would waste your time.

I am very happy for you on your new budding relationship.

Even more happy to know that you are encouraged to keep on managing your HS.

You will reap the benefits.

Have a great weekend.