carmen33
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Hey Shutterbug, welcome to the group, your in a good place, we are still fairly new here, just opened this group about 2 months ago, if even that, I am with you on the long term suffering, I have had it I believe since at least 14 y.o. and am 48 now... have 3 brothers two of which have it also but no where near as bad as what I do, I am in all three stages in various parts of the body.. 1 mainly in the groin, 2 under the breasts and 3 under the arms, I am blessed if you can be with this illness, that mine tend to stay in remission most of the time, and the largest has been just at egg sized.. but mainly are small, and irritating, I've had one I.D. on them, had blood poisoning at 14 from trying to use drawing salve.. won't do that again, and won't recommend it.. it's the walnuts that like to sit on the inside of the crease of my thigh or on the muscle under my arm that causes me the most problems, although the ones under the breasts are a real pain too, hard to explain to your boss you can't come in to work that day, because you can't get into a bra..lol... it's tough trying to explain something that someone else doesn't go through, how to explain the pain, embarrassment and everything else that comes along with this damn disease.. dating for me was the hardest part I think, cause how do you explain what you have if you don't even have a name for it yourself? I met the hubby 9 years ago, finally got a name for it 5 years ago..no one else had ever gave me a name, it was my heart doctors nurse of all people who told me about it.. I tease my husband when I have one, I call for Doctor Johnson..lol, he helps with the bandaging, and medications, I just use gauze pads, tape and triple antibiotic ointment on them,and let them take their course, only when the pain became unbearable did I consider the id for it.. no matter how much med the doctor gave me for numbing it, I still almost bent the posts on his table.. he had to give me a tongue depressor to keep from screaming.. I use 10mg lortabs to take the edge off the pain of them.. I am glad to have you here and look forward to talking with you again.. |
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