Hi Cathy  WElcome! I love your attitude too. We can't let this crumby disease run our lives. Sometimes it gets to a point that it's all you can do to get through the day. When that happene to me, i finally asked my dr. to please find a way to help me get the apocrine glands and tracts and lesions removed. He said ok, I can do that.  Well he got me all prepped on the scheduled day, and it was so much worse even by then, he too one look and decided it was way beyond his skill level. He called a surgeon friend and asked him if he would do the surgery. Now, this was in 2000 and even less was known about HS. But the surgeon did his best, and I was basically HS flare free for almost 4 years. I would do it again right now, but Medicare doesn't deem HS debilitating enough to warrant coverage. Sheesh! So now I just do what I can with my home remedy regimine and an occasional antibiotic for secondary infection and I live a pretty good life. I do know that others have much worse cases than I, and it is much harder for them to keep a stiff upper lip. We are all different. Keep up the good outlook, but if you need treatment above what you are doing, don't hesitate to see a dermy who does HS surgery, or contact the HS Institute about the mew laser surgery. I look forward to getting to know you! Karen Shoot for the moon...if you miss it, reach out and grab a star.
Karen
I am not a medical professional. All comments are based on my own experience and/or from articles I have read. |
"Before i found MDJ i was in the deepest darkest part of my life after my abduction. I wanted to feel safe. I wanted that sense of being a normal person.Finding MDJ and the people with in it has steered me down the correct path into the light of hope. The feeling of hope that i was not alone,the feeling of hope of understanding,and the feeling of hope to move on. I never give up hope." (1magicman)
Hello...it's nice to be here. My name is Cathy. I have had HS since I was 10, after I fell down the stairs with a bowl of apples. It all started on my tailbone to which I just recently had surgery on in January. Other areas that have been affected are both sides of my groin, and inner and outer labia. 
I try not to let my HS stop me. I still travel, go to movies, the casino, tag sales, and wander through museums, etc. I refuse to let HS kick me too my grave before I say so. 
Anyway, welcome to our group- we are so pleased that you have found us! <3 Candace