Hidradenitis Suppurativa Support Group

I am glad to have found you all. My HS is in the waist band/ groin area. I am not exactly sure when I first broke out, over 6 yrs ago. I used to work outside all the time, so I am happy to be in the A/C. I have had one treatment of anti-biotics and nothing happened. I would say I have the tunnels that connect them. Just when I get one feeling better, another will pop up on the other end. Hope to learn all I can and try these aliens. I don't see many men on here, I know I'm not alone in this right. Great to be here.

Thank you

bluesbrother, welcome. I also have my HS in the groin/waist band area. This is definately the cite to go to for info. I am new also, so I am still learing and reading even though, like you, I have had mine for over 6 years but was misdiagnosed. Antibiotics have not helped mine either and only gave me yeast over the years and become immune or allergic to most of the antibiotics. Try reading alot of the older posts where many of the members posts treatments that work for them. We are all individual, so what may be best for one may not work on another. This is an awsome group and everyone seems to be there for one another - even if its just to vent to relieve some of the stress sometimes.

Gwenda

Hello bluesbrother, Welcome and make yourself at home. It's nice to see another man posting! We have several in the group but only a couple post regularly. Guys are shy it seems. Who knew?

If you want to private messag anyone of them I can give you their usernames so you can get in touch. They are usually very happy to reply and answer any questions.

Maybe Cal or Steve will see this post and reply. He has been busy moving but maybe he will look in. He is in Great Britain and fun to talk to.

Karen (sorry steve, how could I have left you out?)

Post edited by: oregonnative, at: 06/28/2012 05:00 PM

Hello bluesbrother welcome to the group sorry you are suffering with HS if you need any thing just hit me up.

Steve

Welcome to the group bluesbrother as its already been said for lots of info on hs this is definitely the site but beside the medical aspect everyone here understands what hs does both physically and mentally to a person so dnt ever be afraid or ashamed to post if your havin a rough day. There will be someone who9 says something thatll turn that rough day better

Hello BB! Welcome to our little family! Yes, we do have a few men on here that like to chime in every now & again. Cal & Steve are the two most active members that I can think of, off the top of my head. No worries though, we are not modest here so feel free to ask away with any questions that you may have! I have HS on both sides of my groin & on my buttocks (ugh) so I know that pain, literally, that you can speak of. I hope that we get to hear from you soon!

Also, where do you live? Perhaps a member lives close to you & can relate... I live in Oklahoma & our heat wave is killing me! <3 Candace