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carmen33
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Hey y'all are any of you working? or when you did, have you ever had to explain the bumpies, to borrow shutters word to the boss? I've had to explain a couple of times, like when I was working retail and had one in the crease of the thigh, another time here just a couple of years ago, when I had to explain that I could not come in cause I could not get into a bra, now it looks like I am going to have to explain again. Lovely of all lovelys, it feels like I have two of them coming up in the crease of the right thigh, hopefully between the hot wash cloths and I believe I will try the carrot or grape polutice that Shutter shared with us, it will either decide to go away or at least burst, hate having to break in a new boss, I've already told him about the diabetes, just had to tell him today, that I had depression, as I had to explain why I fell apart Thursday and had to leave work, didn't want to tell him that while the depression is apart of it, I actually have bipolar.. got a med increase, saw my therapist, so doing a lot better on that one, guess I ought to print off some material for him on Monday..lol, have a new doctor to break in Friday, but at least with the doctor I can drop the shorts for...lol.. Any ideas? |
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piscespainter
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Hi Carmen, I work two jobs, and have recently had to explain at both. I am very fortunate at my full time job that I have a very understanding boss. He is a great guy to work for. We are in a very small office, share stories about our families, etc., so we are almost like family in a way. Even still, I had to explain HS to him a couple times before he 'got' it. I had my Dr. fax a letter to the office, and I stapled that to a "What is Hidradenitis suppurativa" one page explanation I got from the internet. He read the whole thing. I explained that it is not all the time, but when I have a bad flare up. My other job is in retail, I recently requested Sunday off, and finally got it.....I've been working 7 days a week for over 6 1/2 months, so I am very excited to finally have one day off. I think it will help. I gave them the same Dr. letter with explanation. The personnel manager seemed much less interested in it lol. You have a lot of other things going on, I applaud you for managing all of it. My advice would be the general Dr's note, saying that when you have a bad flare up, you are in excrutiating pain and should be allowed to stay home from work, as you cannot perform daily functions. Have your Dr. say to call if they have any questions. Good luck with breaking in the new boss  We have all been there...just be honest, I think that is what matters most. I hope you find relief soon, let us know how the poultices help. *hugs* Karyn |
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hsshutterbug
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 lost my job..just before the first and only surgery I had in 2005. THats okay..she was a b%^ch..lol. I dare not let her know ..but that was that boss. However I currently get a lot more space as I do freelance. It is great for now but I worry about the future. I think Karyn really gave a great reply and I will do the same when I look for another job. Hopefully I can do the job hunt at the end of this year. Hit the HSUSA site and there are great handouts to explain the illness. Put together by those who suffer from it..not medical personnel who judge you by it. Here is the link;check under publications: http://www.hs-usa.org/resources.htm I would like to know how the talk went, Carmen. If its too personal then no worries.  At least let us know if it went well..or not.
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hsshutterbug
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 Way to go Karyn for getting the sundays off.At least now you have a day to rest. Now if I could wave a wand and get money for all of us...then we could all afford more days off. Going to play the lottery..right now..hubby has a cold and I dodged it. Woohoo..signs of a stronger immune system..that is big for me. Take care ladies..and gents. |
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carmen33
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Thanks Karyn, Glad to hear that you got the day off, being able to rest is as important with the HS as it is with the bipolar I have, I have to maintain as regular a schedule as possible..and rest.. As for the GP? I have to train a new one right now, and then can have them do what is needed..lol, hate breaking in a new doctor, as we all know, GP's as a rule are not familiar with the HS, my last one had to be taught about it and the proper treatments at least as far as we know right now, like don't prescribe anti's unless needed. |
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BELLA
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I have been trying to get on SSD for two years, there is no way I can work any more not with the HS, LUPUS, FIBRO, CUSHINGS and Laryngospasms I am in daily pain of 7-10 with never a day less than that for a long time.......... I am lucky just to make it from bed to the computer So I had to close my business that I had for 25 years and am very bored at home I just sell a few things on line but what eles can I do Bella |
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hsshutterbug
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Hey Bella..Sorry to hear that. HS robs everyone of so much in every area of our lives. I cannot imagine what it is like to juggle all those illnesses along with loss of your business. If you ever need a pair of ears...let me know. I am home and can spare the time to a friend. Have you checked HS USA..they have info on how to apply for SSD? I believe the documentation helps you with wording etc. I know its a frustrating process. Not sure if it will help you at this point, as I am sure you have tried every route with the SSD process. Give it the good fight Bella. We are cheering for you. 
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BELLA
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Thank you I will check the HS USA, I have a lawyer now but the more imfo I can get, the better Bella |
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carmen33
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SSD can be such a pain the ass to get, they act like it is their money they are giving you, my younger brother has MS and epilepsy and these frigging morons said he could still work, having 20 petite seizures per day, somedays he is lucky to remember his name, he was working as a 911 operator at the time.. having to drive back and forth to Anderson which is like a 80 to 100 mile round trip each day. took him 4.5 years, before they approved his case, my husband is currently working on getting his, July this year will be 2 years since he filed, degenerative back disease, and they say he will get better in 12 months... hello? how the hell is that going to happen? like our HS, how are we suppose to get better? no cure, no treatment beyond pain pills for our illness, some of us are lucky to get to the damned bathroom, never mind out the door.. They wonder why some folks go "postal" on government offices. |
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hsshutterbug
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Good luck Bella..go get em' girl. Great wording can be found at the HS USA site for SSD applications. Probably help your lawyer as well. Inform yourself..then they wont be able to shake your foundations. I still cannot believe how they turned you down. That being said, submit again as soon as you can. Good luck..keeping fingers crossed for you. Carmen..once again..nicely worded- going postal lol. |
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