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"For my dad" (amanda82)

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Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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Iron Overload ForumsGeneral & Supportlow ferritin could be carrier only
06/18/2008 06:20 AM
greenchristine
Posts: 4
New Member

I saw the hematologist yesterday. He said someone with a low (but above normal) ferritin like me (249) could be a carrier, and not actually have HH. My blood test should be back in 10 - 14 days. This is something I never read in all my web searching.
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06/19/2008 11:33 AM  Top
rowblay
rowblay
 
Posts: 25
Member

My Sis was tested when I was diagnosed. Her Ferritin was (3). Extremely low. Too Low. She still carries at least (1) gene, maybe (2). Who knows. She never got a blood test to check for the gene itself.

But, She still carries at least (1) gene with no symptoms so she can be considered a carrier at this point.


Previous discussions I participated in:
brother has hemachromatosis
tiredness
New Member
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Health Topics: Ferritin, Test
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Iron OverloadIron Overload ForumsGeneral & Supportlow ferritin could be carrier only

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