I saw the hematologist yesterday. He said someone with a low (but above normal) ferritin like me (249) could be a carrier, and not actually have HH. My blood test should be back in 10 - 14 days. This is something I never read in all my web searching.
My Sis was tested when I was diagnosed. Her Ferritin was (3). Extremely low. Too Low. She still carries at least (1) gene, maybe (2). Who knows. She never got a blood test to check for the gene itself.
But, She still carries at least (1) gene with no symptoms so she can be considered a carrier at this point.
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