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Hearing Loss Support Group
Hearing Loss Support Group
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Hearing Loss Community Hearing Loss Support Forums General & Support HEARING LOSS OFFICIALLY DIAGNOSED
HEARING LOSS OFFICIALLY DIAGNOSED
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07/23/2008 16:21
ApacheJones
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 Hello.....I had my appt with the ENT doc yesterday and it's official that I have "profoundly severe" hearing loss in left ear and "low to moderately severe" in right ear. What a bummer. He is putting me on a medication schedule for 2 weeks in case the sudden hearing loss in the left ear was viral....putting me on a prednazone burst for 2 weeks, 40mg to start and then the taper down and also an anti-viral med.

He says I would benefit from a hearing aid in the right ear, but probably nothing can be done about the left one as sounds are just so distorted, who wants that amplified?

I also have another test coming up in August called ABR, has to do with the brainstem or something. Not an uncomfortable test -- pretty easy just laying there with a probe on earlobe and forehead. Anybody had this done? Let me know.

So that's where I stand and I'm not too happy. As mentioned before, I am fast becoming MY MOTHER. hahahahaa! Oh well, she was wonderful and lived to be 94 with no illnesses except the last month. OH, and I bought a telephone that is called Clarity that amplifys the caller's voice. It works amazing and I can hear in the left ear even tho it is still distorted I can make out the words pretty good.

OK, that's my story......

Charlotte (Apache Jones)

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09/25/2008 14:22
hopefulwishful
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 I have been hearing impaired since i was 11. My sister is deaf my daddy has 24% understanding word ablity. at least he was old hes 90. I guess his loss strated in his late 70's.My brother who died was hearing strate when he was about 16 impaired my other sister is hearing impaired started in late 60's.I guess you can see its heraditry.I have one brother it hasn't hit yet.I just go tnew hearing aides but had to get behind the ear. They have more powerful microphones.hopefulwishful
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09/25/2008 14:49
ApacheJones
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 Thank you for your response. Yes, hereditary is for sure. My mom started at about age 70 and she was wearing 2 aids. I think if she would have needed new ones, she would have gone to the BTE type and it might have made a big difference with her. I am just plugging along saying WHAT a half dozen times a day. I am not ready for aids yet, but I am not vain or anything not to wear them. I do okay at home, but public noises bother me (background). OK, later......Charlotte
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09/25/2008 17:18
hopefulwishful
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 public places are the hardest when i was younger didn't want to go out much.at 11 children are cruel. the thing about hearing aides that they only last about 4 to 5 years and usualy my hearing is worse.yes deaf is scary I do know signs but am rusty not around my sister much now.sound is beautiful people take it for granted.

hopefulwishful
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09/25/2008 17:50
ApacheJones
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 What is the most scarey for me is relying on one ear ony and thinking "what if the good one goes?". It's like living with one kidney or one lung. Geez, and the so called good ear is considered low to moderately severe hearing loss. The left one is Severe Hearing Loss and all I hear out of it is distorted chipmunk chirps. ~Charlotte
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09/25/2008 18:34
MotherofBoys
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 Hi Charlotte,

I know that this time is quite scary right now. But the more you stress over the possibilities, the more your hearing system will respond. It is a very delicate system that requires precise balance of nutrients, oxygen....... Stress changes those levels in our system.

On a more brighter side, and far reaching in terms of a time-line, there is always a cochlear implant. They are fabulous!!!

I have met with many recipients and it is just amazing the amount of hearing they have regained with the device.

Hang in there Charlotte and know that I am usually around the site somewhere. You can always PM me if you like.

MoB







Group Leader:
ASD, Autism, Hearing Loss, Parenting Multiples, Post Partum Depression and Tinnitus Support Groups.

"I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living, it's a way of looking at life through the wrong end of a telescope and that enables you to laugh at life's realities."

--Dr Seuss
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09/25/2008 20:51
hopefulwishful
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 well I went for many years with only one hearing aide as a child. Its very uneven hearing.I now have 2. cochlear implant they say are great if they had had those when my sister was small mom would have gotten her one.But now that she is grown she doesn't want it. she has never had it so she doesn't know what she missed so she is happy the way she is. I read lips by the way and can't stand to be in the dark when people talk. like sitting on a porch without a light.my dad has a big problem he doesn't hear he doesn't read he doesn't sign he doesn't lip read.hopefulwishful
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09/26/2008 07:10
MotherofBoys
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 Hopefulwishful,

As an Audiologist (and the Hearing Loss Group Leader) my thoughts were just that. I was not meaning to anger or make anyone think that they needed to be fixed.

I have been in the Deaf Culture for years and understand the perspective people have about their hearing loss. Some don't want "to be fixed" and others search and search for resolution to their difficulties.

I respect both sides.







Group Leader:
ASD, Autism, Hearing Loss, Parenting Multiples, Post Partum Depression and Tinnitus Support Groups.

"I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living, it's a way of looking at life through the wrong end of a telescope and that enables you to laugh at life's realities."

--Dr Seuss
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09/26/2008 21:31
hopefulwishful
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 I would do whatever it took to hear unfortunatly not much can be done no surgery whatever not bad enough for co implant

hopefulwishful
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09/27/2008 06:40
ApacheJones
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 I am retired and live on minimal income, no savings or anything. Poor planning is all. Anyway, I couldn't afford a cochlear implant. ATTENTION HopefulWishful.............I just purchased a DVD course in lip reading. Did you take a course or did you just kinda watch and learn? To me it is hard. I have been lax in looking at the DVD. I better get going on it so I can learn the facial movements of certain alphabet sounds. Would love to talk to you direct if you want to share your real email address. Mine is ApacheJones@gmail.com Have a day!!! ~Charlotte
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