brkat03
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Nice to meet you all. My name is Kathy. I joined this group to try to find someone with some similar problems as mine. I have been diagnosed with a seizure disorder that affects my ability to speak and reason and leaves me severely disoriented. In minutes I can turn from a normal person to someone who appears mentally retarded. The affects of the so called seizure can last from hours to days and when it wears off I am fine again. It has been happening so frequently it's disrupting my life and my work. Tegretol is not slowing it down. Stress, weather changes, fatigue, not eating enough, alcohol and caffeine are some of the triggers. A psychiatric evaluation assured me this is not psychiatric. I also have swollen joints and fatigue, weakness, stomach trouble, menstrual disorders and a whole myriad of unexplained symtoms. Tests for Lupus, rheumatoid arthritis and Lyme disease all came back negative and I'm at my wit's end searching for answers. I don't want to just settle for a diagnosis for a seizure disorder when I feel so sick. There are times it is in remission and I feel fine even for months. I have a positive lupus anticoagulant but negative ANA and elevated eosiniphils. I just don't know where to get help anymore because I don't know what's causing it. I'd appreciate any ideas anybody may have. |
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