"Not having any local Bipolar support groups where I live, MDJuntion has given me a place in which people understand what I am going through and has given me a new outlook on life with support that is real and good. Without the support that I receive from MDJunction, I would be wandering through life with no one who understands me. I owe so much to MDJunction for giving me a life line to help get me through the toughest times." (nvrsubtle)
I have been living with CRPS/RSD for about 2 years now and have yet to find one doctor that has even a small clue about this disorder. Dr. Kirkpatrick, who heads up the RSD foundation is fairly close to me and I did see him but he doesn't accept regular patients. (though they neglected to tell me this when i called for the appt to see him) His medical care starts at diagnosis and stops at the sympathetic blocks and obviously someone with CRPS needs a physician that can do more than a few shots. PT,medications etc. are all the norm and necessary for someone with this but i've had no luck in finding a good doctor as of yet.(after 2 yrs of looking I might add) So if anyone has any info PLEASE let me know, any help would be so so so appreciated!
I have had RSD since 1981. It is tough to live with but options are not there. Pain management is a joke. Physicians don't know anything. It is war with RSD and only one of you win. For me, I won and will not allow RSD to ruin my life.
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