Breast cancer support group

I'm trying to find an online support group for breast cancer patients.

I am about to have lump removed and I’m worried as hell.

I don’t think I can handle a group support group right now, maybe after the surgery.

A link would be great.

J

its not really a support group, but a major source for woman with breast cancer.

I haven't seen any real support group on the net.

bcmets is very big and used by many women, but it’s a mailing list, which is different.

there are others, but mostly for a specific illness or problem. i don’t know of any big ‘internet community style’ support groups.

.....

i’ll get back to you on this...

The reason that I bring that event to this forum is twofold....

In the first place, it amazes me how blasé I have been about this stuff, because I am at an age (60) when, as my body's resilience to disease diminishes, I SHOULD pay more earnest attention to "crusty lesions" and other things.

In the second place, my musing over the crusty spot led me to do some reading about cancer. In that research I ran across an astonishing strory about a male victim of breast cancer. http://www.johnwnickfoundation.org/index.html

Although I still have the mindset that "Those thing only happen to other people....", reading the article has given me a wake up call in the matter of taking things more seriously.

Thanks, Y'all!

James R

www.blessedtobebonkers.com

http://www.ibcsupport.org/

http://www.cancer.org/docroot/home/index.asp

http://www.breastcancer.org/

http://lbbc.org/

http://www.plwc.org/portal/site/PLWC

http://www.y-me.org/

http://youngsurvival.org/

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.

Gilda's Club is in many major cities. In Detroit it is a house where you can go for meetings, activities, ... to socialize with other patients/survivors/co-survivors/family members, ...

I hope everyone is getting the help they need! It so helps just to find someone in a similar situation that you can chat to. Even when your surrounded by lots of loved ones, you can feel so alone because it seem like no one truly understands.

I have found many people to chat with on-line; but one of my biggest supports was a child-hood friend who was diagnosed with breast cancer the same week I was. We could relate to each other a little too well. We were on opposite treatment plans, I did chemo first she did surgery first; so we were able to fill each other in on what to expect.

Hugs

Jessi

6/9/06 - biopsy positive for cancer
6/23/06 - DIAGNOSIS: stage IV (T4d N2 M1) invasive ductile carcinoma NOS with bone and liver mets; 17 cm mass (primary tumors), inflammatory breast cancer(IBC); HER2/neu+, HR-
6/26/06-12/11/06 - Chemo FEC/Taxol w/Herceptin & Aredia
12/20/06 - right modified radical mastectomy, 7 of 13 removed nodes showed evidence of prior disease
12/21/06 - No Evidence of Disease (stage IV/NED); complete remission
2/6/07-3/22/07-Radiation 28+5 boost, 6040cGy.
CURRENT: Still NED, taking Herceptin and Zometa without end. Heart and kidney function remains normal.