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"I HAVE STAGE 4 MELANOMA" (divergirl1956)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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10/14/2009 01:16 PM
loopyloz
loopyloz
 
Posts: 14
Member

That's awesome! Sounds like ur mum is a real blessing. I'm sorry she doesn't understand the depression tho. I can relate to that, my mum doesn't understand depression and she will say stuff like "get over it" and she once called me a "quitter". I'm still angry with her for that. I do get along with my mum most of the time, but I reckon she needs to get with the times and maybe be a little flexable and not so set in her ways and realise that some things are ok for some people and some things are not ok, lol I hope that makes sense haha. My oldest child Brooke, she is 19 and we are really close, I've been lucky to have a fab daughter, but I can see that my mum is a little jealous of my and my daughters relationship.

Yeah that is for sure, the docs do say the younger you are the better chance of recovery and I have also heard that we shouldn't have flu shots because that can make us have a relapse.

You know my sister said the same thing to me about needing medication because I hate it and she said to me if I was diabetic, I'd have my insolin, so I should stay on them. It is a very good analogy.

Yeah I'm up and down like a yoyo with my moods, it's quite frustrating.

Sweety your not a coward and that is not the correct term for someone who has to fight everyday of there life just to get through the day. I know their was a time when I wanted to cut, it was like I just couldn't feel myself, that was one of my darkest episodes. I know sometimes I still feel suicidal and the easiest way for me is to just keep remembering the people who love me and especially my children, where would they be without me. My hubs is pretty awesome too.

Well I had another sleepless night. I'm having trouble again with sleep, but I think I might just try and get some.

Be safe and well

smiles and hugs

()Smile

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10/14/2009 01:44 PM  Top
PicturesquePsyche
PicturesquePsyche
 
Posts: 129
Member

Yeah, we aren't supposed to have ANY kind of immunization without talking to your doctor who knows your case. I have heard they're linking multiple shots with GBS -- regular flu shot, swine flu shot, even Gardasil (the 3-shot system for preventing cervical cancer). I had the Gardasil, but the last shot was over a year before I got sick, so I'm quite sure there's no link there for me. In fact, they never figured out why I got it. But yeah, just be very careful about immunizations. I haven't heard of any genetical link, so I would reccomend that your daughter get the Gardasil shots, if she hasn't already. The risks are minute compared to the pprotection it provides. As far as my mom, sometimes I feel I couldn't ask for a better mother, and other times I wish I was adopted (I've always been the black sheep anyway) so I could have a hope of a better mother. She was helpful in my time of physical need, but when it comes to my mental health she's quite the idiot, lol. she also tells me to just get over it, and why dont you just get up? just get up and do it? she calls me names, like im weak and lazy and shit like that. but anyway I hope you get some sleep. I just thought about it, and I'm wondering what the time difference is between us? lol. right now it is like 4:45pm (1:45pm by MDJ's clock, because they go by western time i think, and im eastern) but if memory serves, you're like half a day ahead of us here? haha its stupid i think about weird shit :-P
(Longer, better, faster, stronger)
Dat dat dat dat that don't kill me
Can only make me stronger.
I need you to hurry up now,
Cuz I can't wait much longer.
I know I got to be right now,
Cuz I can't get much stronger.
Man, I been waitin' all night now,
That's how long I been on ya.
(I need you right now.)
(I need you right now.)

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10/15/2009 07:57 AM  Top
loopyloz
loopyloz
 
Posts: 14
Member

Yep Brookie has had her Gardasil, well actually I think she has had 2 and her next should be due soon. Yeah I always felt like the black sheep, but I just look at it in a different way now, I look at it as I'm just Unique lol. Yeah I do understand it to be hard when she says stuff like that, but try and look at it in a different way, it's her way of coping and it worries her so much to see you that way. One thing I know for sure is she wants you to be happy, I'm a mum so that's what I reckon it is. I'm sure she loves you dearly and doesn't mean to make you cry. I'm pretty sure you know all that. I've learnt to say to my mum if we're headed for a fight to just say " Mum I'm not able to have this out with you on the moment and I need some time to think". My 13 year old boy Luke has clinical depression and can get very violent and I tell him when he's not feeling right to go have some time out and when he feels like talking, that I will be here. Anyways it often works and keeps the peace in the home. Brookie has depression and she is on Meds as well, she's just gone through some more assesments and we are waiting for the results, we should have them soon.

Well I'm gonna go and make some cookies for the kids, so I'll catch ya soon Smile


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