sherryjoan
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My heart goes out to you and your little grand daughter and your family. GBS is bad enough for an adult, but for a child, I just can't imagine. I read the other replies and they offered good advice. All I can say from my own experience and this may not be the same in your grand daughter's case, but my legs after I had had GBS for several months began at night to seem to have a severe form of restless leg syndrome. I had mild restless leg syndrome before GBS, and kept putting off calling the neurologist when this more intense feeling occured in my legs. My legs would actually twist inwards and my toes would curl inward also. The strange part was only one leg at a time would do this. The neurologist said the nerves were firing in all directions and prescribed the generic drug pabapentin, which helped a lot. I'm sure this can be prescribed for children as it is also for seizures. But hopefully, her leg thrashing may be what the other replies referred to and can be taken care of in a less drastic measure. Best of luck for her! |
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