http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/feed http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sat, 25 May 2013 00:27:58 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/195661-veteran-of-gd#3477251 Hi,i am currently on a waiting list to recieve an egg from a donor so no its not impossible.I ve been told that there is a 30% success rate...although thats not great i still have hope.I have not had my ovaries removed yet and its been advised that i dont whilst im undergoing fertility tretment.I dont have all the answers but if there is anything you would like to ask me id be happy to try and answer any questions tou may have.:)... Sun, 12 Feb 2012 10:40:05 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/3471579-hi#3471579 Hi ive just found this support group and would love to share stories and chat,its good to know im not alone!! Im struggling a bit with accepting the fact i have gd even though ive known for some time...so if you have the time id love your help,thank you.x... Fri, 10 Feb 2012 15:31:02 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/2997748-past-present-and-future#2997748 Hi I'm Xena and I'm 38 I have Gonadal Dysgenesis which I had this problem since i was 16. I was told that my ovaries weren't responding to my hormones and that I could not produce eggs. I didn't have my periods naturally but once they put me on the birth control tablets than I had my periods. I'm on Oestrodial 5mg tablets and I have Implant,I was told that i could still have a baby but only be a carrier. Also I that I will be a little slow when it comes to reading and witting. Because o... Tue, 23 Aug 2011 00:41:20 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/2990792-any-meetings-held-up-in-sydney-australia-for-gonad#2990792 Hi There I'm Xena Jackson Is there any meetings or clubs for Gonadal Dysgenesis that we can attend to in Sydney Australia. Thanks... Sat, 20 Aug 2011 02:26:39 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/2504906-gonadal-dysgenesis-videos-on-mdjunction#2517226 Hi - it's me again... I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that! and another (not related) topic...Two weeks ago we added to the (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!! CU roy... Wed, 09 Mar 2011 03:17:30 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/medicine-treatments/2424244-bioidentical-hrt#2424244 I was just wondering if anybody had ever attempted Bioidentical HRT's. There are a couple of clinics in the area where I live that offer this treatment. HRC Medical is a much larger clinic that offers this, but they are also more expensive. Another clinic in the area offers a similar program for about a third of the cost; however, instead of hormone pellets that are implanted into the hip, they offer lotions that are applied to the hip or inner thigh daily. I have not yet found a synthetic o... Sat, 12 Feb 2011 19:08:08 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/2033254-happy-to-find-this-group#2033254 I am so happy to find this group. My daughter, now 15 was diagnosed with GD last year and had her ovarian streaks removed. I am worried about long term use of artificial hormones and would like to know if there are better alternatives.... Sat, 23 Oct 2010 07:32:40 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/1995834-hello-everyone#1995834 I am 32 years old and have been diagnosed with GD since I was 16... I had a benign tumor on a back muscle and they did exploratory surgery... Where they found the rest of my condition... While growing up, I was always sad that I couldnt have a baby the normal way, but it has hit me even more now... I recently was married in February and while my husband is aware of my condition, up until recently I wasnt even sure what totally occured.... It is good to see there is this group, I wish I woul... Mon, 11 Oct 2010 12:53:13 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/1385428-my-quick-intro-hello-to-all-#1495882 Hi :) Im Amy and I'm 19, I have been hunting for ages for people in the same situation as me and have just stumbled across this website today so I would love to share stories. I have known I had a problem since I was 16 as I hadnt started my periods, so my mum took me off to the doctors, and after blood tests and ultrasounds, they found that my ovaries werent responding to my hormones, so in other words I have Gonadal Dysgenesis 46XX like you. I am on birth control tablets loestrin 20, w... Sat, 15 May 2010 08:15:04 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/422972-hormone-replacement#422972 what are your opinions on hormone replacements... Wed, 25 Mar 2009 13:21:05 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/195671-veteran-of-gd#195671 I was diagnosed with GD almost 20 years ago (after going through a dozen doctors). I've been on HRT for about 15 years...streak ovaries removed...my husband and I tried In Vitro and our son turns 3 this week. If anyone has any questions, I've been dealing with this for two decades so I've probably been there (in my mid-30s now).... Mon, 20 Oct 2008 10:25:35 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/129509-rewowi-am-so-glad-to-find-this-group#129511 By the way...I am currently 27 and have been on BC pills for about 7 years now.... Fri, 25 Jul 2008 15:26:05 -0700 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/49857-recommended-treatments#49857 Does anyone know any successful treatments for hormone replacement therapy? We are looking for a good doctor or researcher who can help us. We were worried about artificial hormones. Any thoughts?... Fri, 22 Feb 2008 21:57:39 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/16189-welcome-to-the-gonadal-dysgenesis-support-group#16189 Hello, Welcome to the Gonadal Dysgenesis Support Group. This Support Group is a comfort place for family members and friends to share and ask questions regarding Gonadal. Feel free to introduce yourself, ask your questions and be around people who are in your spot. We'll be happy to hear your thoughts on how to make this better. Best, roy... Wed, 21 Nov 2007 02:45:34 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/16188-making-the-most-of-the-gonadal-dysgenesis-support-group-experience#16188 The Gonadal Dysgenesis Support Group is full of ways to interact and share your knowledge and experience. It's your chance to be around people who are dealing with the same issues as you do and understand you best. The Gonadal Dysgenesis Support Group has 3 main discussion topics. You can explore them by clicking the link on the left. As this group just started we'll need people to jump start it and make it as productive as other groups on this site are. To get an idea you can visit the or t... Wed, 21 Nov 2007 02:45:33 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/general-support/16187-how-to-join-the-gonadal-dysgenesis-support-group#16187 OK. The No. 1 of all No.1 questions ;-) "I can't seem to be able to respond to a post", "why can't I start a new discussion?". At the top right of any page in the support group you'll see a button for "join this group". Once you press it, you're automatically a group member and able to join the discussions. Try it ;-) now! Waiting for No.2, Any more questions? Best, Alon... Wed, 21 Nov 2007 02:45:32 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/16186-technical-stuff-related-to-the-gonadal-support-group#16186 Hi , I'm Alon, nice to meet you all ;-) I'm in charge of all the technical stuff around the site and the support group. If you have any problem, want to ask a technical question or would like to suggest a new addition to the Gonadal group – please contact me (via PM). I hope to CU here a lot. Sincerely, Alon... Wed, 21 Nov 2007 02:45:31 -0800 http://www.mdjunction.com/forums/gonadal-dysgenesis-discussions/introductions-personal-stories/16185-hello-gonadal-dysgenesis-support-group-im-roy#16185 Hello, My name is Roy. Alon and I run MDJunction. We hope that the Gonadal Dysgenesis Support Group will grow into a real meaningful place for all of you, as other groups in MDJunction are (you can see the as an example). We are here to help in any way we can. Enjoy, roy... Wed, 21 Nov 2007 02:45:28 -0800