Glioma Support Group

My mom was diagnosed with a stage 4 glioma today and my brother and sister and I have no words at all to describe how we feel about the thought of loosing our mother. I dont even know where to start at all. I feel so alone. I talk to my mom every day. Besides my husband she is my rock and my best friend. She has been my support my whole life even when our relationship was touch and go. I have 10 and 8 year old boys and 3 and 1 year old girls. My mom has always wanted a grand daughter and now she has 2 and she may never see them grow up. She is only 65 and to me that is still so young. She could have a good 20 years left. I am just lost right now and researching anything I may be able to do for her. Please someone, anyone help me.

My heart goes out to you and you family. It is an awful time and i can personally attest to that. My father was diagnosed in February of 2010 and recently passed on September 6th, 2011. Being from upstate New York, my mother did not care the distance she took my father to the best facility possible for him. For my family, we have nothing but amazing things to say about Sloan Kettering in NYC. The doctors were always looking out for his best interest. Though I do hope your mothers outcome will be brighter then my fathers, I am confident in saying it will. With today's technology it is so different now then it was in 2010. A personal side note, have a moment to cry and feel awful and curse God, but then get back on your horse and put your mothers health before everything else. My mom was a driving force when they gave my dad a week, and a year and a half later he died. to watch my 46 year old father pass was the hardest thing my 18 year old self has ever had to do, but i am incredibly optimistic for your situation and and keeping your family in my prayers.

Dear Crystal and Ally,

My mom went in for an MRI this monday because she's had some aphasia, memory difficulties, movement issues and has generally just not been herself for the last 3 months. Later on monday she was called to go to the emergency room because there was something on the MRI. It turns out to be a primary brain tumor of the basal ganglia and thalamus on the left side. Because of the location surgery is not possible. We are still waiting for the pathology results which will determine the radiation and chemotherapy treatment. I, like you Crystal, am in complete shock and cannot imagine a life without my mom... she is the matriarch of our family. She has 4 daughters and 8 grandchildren with one on the way in Feb 2012. My mom is the sweetest, smartest, and most loving and generous woman I've known. She is only 65 years old..... too young. This is not what I expected for my mom. It seems so unfair and i feel powerless.