Gastroparesis Online Support Group

Hello all. My name is Larisa. I am 27 years old. I have Diabetes and Gastroparesis. I go to the hospital every other month with a painful admission to the hospital beacuse of pain and vomiting. My doctors keep saying my pain is not that bad. Ignoring it when im out of the hospital.. but when while in the hospital they give me dialudid. They sometimes point me out as a " drug seeker " and say im -NOT- in that much pain. When in fact i am in mind blowing, bond chilling pain. I have tried a lot of things.. but really only perkicets work. I undersstand they make you constipated.. however, the pain needs to be address. My quality of life has diminished and i'm at a cross roads. I don't know what to do. Everyone i turn to says the same - and i am NOT a drug seeker; I am a person looking for a way to live a normal life like every healthy person [ and unhealthy ] out there. Does anyone have any advice? Please? Also. Why do they say Gatsroparesis isn't painful?!? They are NUTS!

Thank you.

Can you find a GP specialist? Pain is definitely seen in in GP. "Pacemakers" are definitely helpful in diabetic GP. You should go to a GP specialist group who does GES ("pacemakers"), be evaluated and get on the list.

Post edited by: jkaands, at: 03/30/2012 08:16 PM

See. My A1C is crazy b/c my sugars are erratic - mostly b/c of the GP. My insulin is being put to use much later.. and nothing is right. So no one will touch me.. surgery wise for a pacemaker.. as for a GP specialist.. its hard to find them.. and with state insurance it's even worse. Excuses I know.. but everyone I have turned to.. says No way or Im just looking for drugs. I don't know if it's my age.. or if it's some epidemic and im just being written off with the " guilty by association " presumption. Either way- I've started to self medicate with Marijuana now. It's the most natural way i've come to find that alleviates the pain just enough to bare making it through the day. It gets worse and worse - im falling on deaf ears and im afraid im going to end up at a cross road of completely giving up. This disease is painful.. both mentally and physically and it seems everyone has a blind eye and washed their hands clean of it.. as if.. screw her. I havent left my house in two weeks.. i cant get up from my couch.. i vomit in a trashcan.. dump it every once n' a while. Just drink water so i dont dry heave and hope like hell i can just sleep away the rest of the day.. week.. years. Never happens- i havent slept more than four hours in the last two years. I get sick at least 6 times plus a day.. everyday since 2009. The pain and the vomiting is a duo of terrorists. It has demolished my existance and i cant find help... deaf ear. deaf ears

GP can be EXTREMELY painful. I get extreme pain. It's a new symptom that was recently admitted as a part of GP. Doctors who are educated about it know it goes from your stomach and radiates through your back and that the pain is just horrible. My dr gets is and Percocets seem to be the only thing that work a tiny bit. I add some heat on my stomach. I take my Domperidome to hope to cut the attack time in half and take a bit of peptobismol as well since it seems to help a tiny tiny little bit. What you need to do is either print out some info about gastroparesis pain and show it to your doctor (who i warn you may not like it at all) or find a doctor who actually knows what GP is all about. Both choices are not easy so you will have to think carefully. You need to convince someone and soon. Cry on their office if you have to. I did. It's not normal to be in that kind of pain and such. Are you on Reglan or Domperidome atm?

I take Reglan.. however it really doesnt help. I eat tums like its candy.. and really try not to eat at all. Im so sick of getting sick i've just lot the will to fully eat more then once a day.. if im lucky. No pain doctor will mess with me.. My primary doesnt prescribe pain meds.. and my gastroenterologist doesnt know shit about SP. I feel like im in a 1ftx1ft box.. talking to the walls and slowly declining. The pain has made it impossible to do anything anymore. I dont want to get out of bed, I curl in a ball and just rock, i simply have lost all will to go through the day when every move i make is a horrid, hellish experience. I cant understand why they cant see it.. so lost.

Can you try to get a prescription of Domperidome and order it online from a Canadian pharmacy? It's like Reglan but with less side effects and many people say it works MUCH better than Reglan.

I just recently found out I have gp. It's such a relief just to know that I am not alone here. My gastro dr also says gp is not that painful. I'm sorry but unless you have it, you can't say it doesn't hurt. I am about to start taking domperidone and was worried about the side effects and safety of that medication due to it not being available in the US. My husband didn't want me to take it...at this point I'm willing to try almost anything. My normal weight is around 115-120, at yesterdays dr appt I weighed in at 100 lbs. I feel weak all the time and my husband keeps telling me to eat, as if it was just that simple.

I understand all too well. My norm weight is 140. I stay at 120 now if im lucky. Im always tired. Weak. Everyone i eat no matter what, comes up. Sugar regulated or not.. im constantly throwing up. The pain is horrible I have actually started to buy perks off the street to help with my pain. None with help, and GP to me.. is an everyday, painful existence and in which i dont think i can handle too much longer. I have gotten all sorts of opinions form different people and still no answers. A battle and war i seem to never being close to winning. will pray for you, and please dont think you are alone, because you most definitely are not. Nothing works for me.. reglan, the like... phenorgan.. zophran [sps? ] all of it. NOTHING.. pain pills to make the pain and sanity to go away. My life really has deteriorated to absolutely nothing.

xoxox God bless.

Know that you are NOT alone! I'm off to my surgeons in about 3 hours for a consultation on removing my (entire) stomach, that's how desperate I've become! This condition/disease is truly a "Living-Hell" & that's the 100% truth!