MDJunction - People Helping People
 

Why wear a ribbon?

 
"I am infertile, but admitting that, isn't going to make me feel any less of a hu..." (SarahLund)

MDJunction to me

JAYEPAWS"It means that finally I have someone to relate too. that I'm not the only one with these kind of problems. it really feels good not to be alone in this. I've made some good friends. I appreciated the support that I have found here at this site,

where as other parts of my life I don't get.
Thank you for being there & creating this site.
JayePaws
" (JAYEPAWS)

more testimonials
Gastroparesis Support Group
A community of patients, family members and friends dedicated to dealing with Gastroparesis, together.
Join This Group
Group Home   Forums   Articles   Members (552)   Diaries   Videos   Leaders   Guidelines
Delayed Gastric Emptying Group RSS Feed
Delayed Gastric Emptying ForumsGeneral & SupportGastroparesis and Botox
12/30/2010 08:05 PM
GPwife
GPwife
 
Posts: 17
New Member

My husband has been in and out of the hospital for the last month 11 times. 5 times in the last 3 days. I got a dr's appt with his gastro dr today and we discussed a couple of options. The dr scheduled my husband for botox injections in the pyloric sphincter. I have heard of the treatment, but there is not much in the way of research on this topic. Has anyone had this treatment? Did it work? What were any complications that you have experienced? He is scheduled to have this procedure done on January 29th and I am hoping that someone can shed some light on this treatment for us.
"The Lord is good to those who depend on Him, to those who seek Him." Lamentations 3:25

Pushing for more treatment therapies for patients with gastroparesis... the pain IS real!
Reply

01/04/2011 09:58 PM  Top
chaffer26
 
Posts: 112
Member

I had it done in May. They told me it could take up to 6 or 8 weeks to take full effect. It never really did anything for me. My new GI said that hte hospital she is at isn't offering it to Idiopathic patients anymore because they are seeing far fewer results than from diabetics who get it done.

However, keep in mind I have failed or am unable to take all the med options available, so it was no big surprise it failed for me.

As for side effects/complications, nothing serious for me. I did have, for whatever reason, a wierd reaction to the sedation. It gave me a migraine. I had never had Propofol before. It seemed to linger longer than the normal Fentanyl/Versed combo I have gotten before, which is bizarre as it is very short acting. I ended up in the ER that night for something to break the migraine because I was told not to take any NSAIDS, which is what I Normally take for it.

Hope this helps you make some kind of decision. Just remember, it's like any treatment, some people respond very well to it, others don't respond at all. It could be worth a try, he may be one of the ones it works for.

Diana (aka my4heathens on Inspire)

07/15/2011 04:09 AM  Top
youngfred
Posts: 1
New Member

Hello,

Can you tell me whether the botox was covered by insurance, and/or how much it costs?

thanks,

fred


07/15/2011 04:10 PM  Top
RonoftheDead
RonoftheDead
 
Posts: 446
Group Leader
I'm an Advocate

If you're asking me I seriously doubt it! They wont even pay for nexium!Pinch Pinch Dizzy

07/25/2011 01:30 AM  Top
Plo83
Plo83
 
Posts: 1260
Senior Member

Ron did you check into Prevacid? My insurance didn't cover Nexium but paid for that one. If not, there's some over the counter stuff that you could try too and maybe save some $. With all the pills we take, saving money is pretty nice. I'd pay like 500$ a month on pills if some weren't covered. Just insane.
I am not a medical doctor. Anything said on here is my personal opinion. Seeking help from a health professional is always for the best!

** I have a broad knowledge about psychoactive medications and the mind since I have studied psychology/therapy. Any information that I give concerning any medication is to be considered generic since everyone reacts slightly differently to any foreign substance. I do not fully know your health history/case. Any suggestion that I made which peaked your interest MUST be discussed with your doctor. Do NOT change your medication intake based on any information which was not provided by your doctor. All that we can offer on MDJ is suggestions to discuss with your physician.

07/25/2011 10:35 PM  Top
RonoftheDead
RonoftheDead
 
Posts: 446
Group Leader
I'm an Advocate

One year (after) my "Transplant" my prescriptions alone were almost 80 thousand dollars! ($78.000.00+) that was not counting any of the procedures I had done, or doctor visits, blood work etc... I'm pretty sure I cannot take that one (Prevacid) because I'm a transplant (not sure?) thanks for the info all the same, it's much appreciated!

Post edited by: RonoftheDead, at: 07/25/2011 10:37 PM


07/26/2011 07:33 PM  Top
Plo83
Plo83
 
Posts: 1260
Senior Member

OMG that is INSANE!!! That's when I'm glad to be Canadian. Surgeries and such are free here and if I needed those meds after a transplant, they would also be covered. I feel so bad for you, Ron.
I am not a medical doctor. Anything said on here is my personal opinion. Seeking help from a health professional is always for the best!

** I have a broad knowledge about psychoactive medications and the mind since I have studied psychology/therapy. Any information that I give concerning any medication is to be considered generic since everyone reacts slightly differently to any foreign substance. I do not fully know your health history/case. Any suggestion that I made which peaked your interest MUST be discussed with your doctor. Do NOT change your medication intake based on any information which was not provided by your doctor. All that we can offer on MDJ is suggestions to discuss with your physician.

07/27/2011 04:01 AM  Top
RonoftheDead
RonoftheDead
 
Posts: 446
Group Leader
I'm an Advocate

Funny you say that, we are thinking of packing up & moving to the great white north & eventualy becoming citizens. Do not worry about me I'm just glad to be alive! To be honest as long as it's not my wife or my child...I can take it, like I said better me than them, I'll be alright I've got a lot of fight still left in me! Hope you're having great week, all my best...

Ronny Smile


07/28/2011 02:38 PM  Top
Plo83
Plo83
 
Posts: 1260
Senior Member

Even sick, you have a great outlook on things and clearly love your family very much. I'm glad that you're surrounded by those you love.
I am not a medical doctor. Anything said on here is my personal opinion. Seeking help from a health professional is always for the best!

** I have a broad knowledge about psychoactive medications and the mind since I have studied psychology/therapy. Any information that I give concerning any medication is to be considered generic since everyone reacts slightly differently to any foreign substance. I do not fully know your health history/case. Any suggestion that I made which peaked your interest MUST be discussed with your doctor. Do NOT change your medication intake based on any information which was not provided by your doctor. All that we can offer on MDJ is suggestions to discuss with your physician.

07/28/2011 06:13 PM  Top
RonoftheDead
RonoftheDead
 
Posts: 446
Group Leader
I'm an Advocate

Thank you my friend...Without them (family) it would be so much more difficult, they're my stength. I totaly believe that we are only given as much as we can take, sometimes I feel like I've had all I can take but then I'll see somebody who is MUCH worse off than myself & thank God how lucky I am to have a loving family, I think I'd rather be in the shape I'm in versus being healthy & having nobody to share my life with! I really mean that...Life is what you make of it & I'm not going to let my health deffine who I am.

I hope you're doing as well as can be expected,if you EVER need somebody talk with feel free to contact me anytime.

All my best...

RonnyCheerful

Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 Next > End >>


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved