My name is Cassidie. I will be twentyfive this year. I have a daughter named Alenna, she is just over a year and she has classic galactosemia.
Alenna was five days old when I got a call from the state saying that I needed to rush her to the hospital becuase she might have a disease, and becuase I was breast feeding she might die!! That was by far the worst moment of my entire life. I was scared to death that my little baby may die.
I don't really remember what was said to me at the hospital, I actually can't really recall that two week waiting period, or the first metabolic appointment. It was so stressful and scary it just all blurred out.
Any how, Alenna is very healthy right now. Her levels keep going down, she is at a 2.4, and she is a happy happy baby.
I am glad I found this support group. I hope every one is healthy and happy!!!
Hey there. That is a very scary moment isn't it? We got that call too. Along with a flurry of activity rushing to the hospital, health dept, drs office, etc. And the dire warning against breast feeding. My daughter ended up as duarte though thankfully. Unfortunately though, there is even less research into the varients than the classic form, which doesn't have much either. Anyway, welcome to the group. Sorry you have a reason to be here but glad you found us.
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