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Food Allergies Support Group
A community of patients, family members and friends dedicated to dealing with Food Allergies, together.
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03/25/2008 19:06
principessa
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I am unbelievably hurt and infuriated by one person in my family (not my parents or brother) who just refuses to take my allergies seriously. She often dismisses them saying that she will be careful to wash her hands, etc. but she is often careless. What bothers me the most is that we just had a birthday dinner at my house and my mom made everything so that I could eat it but this person brought over something that I was allergic to. As a result, things got cross contaminated and I only ate a small piece of chicken because everything else was no longer safe. This person barely showed any emotion and definitely did not show any remorse. I just had my first severe reaction where I needed the epi pen and had to be rushed to the hospital and yet she still brings something in my house that could kill me! I don't understand how people can be so insensitive and so carefree about these things. What does it take for these kinds of people to understand the severity of food allergies? Has anyone else had similar problems with people in their family and if so what did you do to get across to them?
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03/30/2008 01:48
MaryR
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I have family memebers who cook things I can't eat on a regular basis, but my allergies are not as severe as yours so I don't have to worry as much. The tiny ammounts from cross contamination have never made me react (so far), but it can be aggrevating when they make cookies or brownies and my sister and I have to sit over a garbage can carefully excavating all the nuts out of our desserts (yes, I have done that sometimes) or just not eat it.

My advice for your situation is to recruit the rest of your family to help you educate her. If it is just you telling her she may discount you as being overdramatic or something. If your entire family is united in saying things to her (like "Have you washed your hands? We have to be very careful that Principessa doesn't have an allergic reaction. We don't want to ruin a family gathering with another trip to the ER" ect.) eventually she might get a clue.

If you know she is coming to something maybe your Mom would ask her to bring something fairly safe that she can't mess up too badly (depending on what you are allergic to maybe salad and bread or something like that). Or if she is extremely dense your Mom could have her put her food directly on the table with designated utensils so that it can't cross contaminate the food in the kitchen. Then you make your plate of food from the kitchen before things ever get served and you will know it is safe.

If you have had a good relationship with this relative up until now you might try either having a conversation or writing a letter to her about it. If you try this route I would be sure to try to assume that she has the best intentions in the world and give her the benefit of the doubt. People who don't have food allergies have a lot of trouble getting their brains around it sometimes. They don't see food, any food, as a potentially lethal weapon even though to us it may be. You see her walking in with poison aimed specifically at you and then wondering why you are upset. She probably sees it as a favorite recipe, that oh yeah, you can't eat this one.

If you are able to explain to her that after your severe reaction and the whole epi-pen/hospital incident, food looks different to you now. Where other people see something delicious and appealing you see danger and a threat. And while you know she loves you, she is bringing what looks to you like a threat into your house, your safe area....and you really wish she would try a different recipie next time she comes over so you could enjoy her visit instead of being terrified by the percieved threat that other people see as delicious food.

Then thank her for listening to you and being understanding (if in a letter, hopefully in person too, cause hopefully she will be). Like I said this is really hard for people who haven't experienced it to get their brains around.

Mary
NDPH support group leader
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07/19/2008 04:55
ashleyd
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wow! i had a similar experience with my family. my son is allergic to peanuts and eggs and we had issues over memorial day weekend with my family this year. one thing to do is not invite her over anymore. or tell her not to bring anything if she is coming. i know that seems severe, but it is your LIFE at stake.
Life isn't always what you want, but it's what you've got, so stick a geranium in your hat and be happy.
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08/18/2008 20:06
carolyn2
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been there done that i do it on a daily basis my family just dont seem to get it that i am allergic to iron pesto or sesamee seeds or cashews and pine nuts

so i usally end up swollen or vomiting

and in the hospitial myself


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08/26/2008 07:33
dbryant
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How do you go about getting tested for food allergies

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    o.c.d.
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08/26/2008 17:36
MaryR
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Most of the things I am allergic to I figured it out myself, but when I got allergy tested for all the other environmental things (skin prick testing) they tested some of the food allergens that I had identified up to that point (fruit mostly...I don't think they tested any nuts, they just believed me on that).

I can tell because my mouth and throat start itching and sometimes I get asthma. It is really annoying if I thought it was something safe and then I have to go read through the ingredients (or ask) and try to figure out what caused the reaction. I am sure there are better ways out there than trial and error, but that is how I have found mine. The allergist just confirmed what I told him.

Mary
NDPH support group leader
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08/26/2008 17:44
dbryant
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Thank you MaryR

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