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Fibromyalgia & Lupus Forums › Medicine & Treatments › Benlysta: New Lupus Drug
02/25/2011 10:47 AM
shamps663
shamps663
 
Posts: 4
New Member
http://www.huffingtonpost.com/2010/11/16/fda-panel-backs- first-new_n_784556.html

This was one of the happiest days of my life! Has anybody tried this new drug? Does it actually work? My doctors are skeptical and won't prescribe it to me just yet. I'm so anxious, I feel like it would be a miracle drug!!
Reply

07/31/2012 12:24 AM  Top
shema1999
shema1999
 
Posts: 40
Member
I'll be having my 2nd infusion this Friday and thanks to the steroid injection and benadryl immediately before hand, so far so good. I hope that you'll be able to try this soon, if you want to. It took mt a year to finally cave in and commit to these infusions. I've had so many hesitations because of the potential side-effects. Have a great week! Ellen in Binghamton,NY

08/01/2012 10:33 PM  Top
LenaT14
LenaT14
 
Posts: 421
Member
PM nurse black, shes part of an invite only group called Benlysta Buddies and is the resident expert on the topic.....I personally havent tried it but some folks from the Lupus group have success.

Good Luck!

Hugs,
LenaT14
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