http://www.mdjunction.com/forums/fms-lupus-discussions/feed http://www.mdjunction.com/forums/fms-lupus-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sun, 26 May 2013 02:00:44 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10705630-pretty-definite-diagnosis#10706736 ... Sat, 25 May 2013 10:53:10 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10703230-fibro-jewelry#10703230 Since this is Fibro Awareness Month- I wanted to share with you some sites that have Fibro Jewelry. www.inspiredsilver.com Bracelet http://www.inspiredsilver.com/p6449_fibromyalgia-awareness-bracelet.html Necklace http://www.inspiredsilver.com/p6448_fibromyalgia-awareness-necklace.html http://cure4fibromyalgia.org/fibro/index.php?main_page=index cPath=1 http://www.cafepress.com/+fibromyalgia+jewelry http://www.zazzle.com/fibromyalgia+necklaces... Thu, 23 May 2013 16:07:38 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10596910-recently-diagnosed-need-advice#10693520 OMG....five?!?! I've been trying to survive working, raising my one child, and keeping up with life!! My husband works lots too but no traveling, he had to cancel his last trip to Malaysia because he was too worried that me and my son weren't doing so great alone. You must be superhuman ;-)... Sun, 19 May 2013 17:34:42 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10639559-fm-diagnoses-lupus-diagnosis-imminentchanges#10649575 Information is power!:)... Mon, 29 Apr 2013 08:13:10 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10645394-ummm-really#10647760 Welcome to the group. I'm REALLY glad you're getting into the doc on Monday. Hopefully, he'll make you feel more at ease. I have Lupus showing up as sometimes being possitive, and sometimes negative. As well as speckled pattern, etc, etc. You stated that you don't have any skin issues. Do a little internet reseach, and you'll find that there are a couple different types of Lupus. Try and hang in there!! And, know that you can come here and share, vent, or ask questions. We'll be here for ya... Sun, 28 Apr 2013 11:12:27 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10299047-medication-and-lupus#10646847 I take a tylenol and imovane before bed for sleep and I take plaquenil to deal with the photosensitity and lupus. This balance seems to be working so far.... Sat, 27 Apr 2013 20:07:31 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10606093-new-here-again#10634480 Welcome back to the group! Sorry to hear that your Fibro is much worse. :-(... Sun, 21 Apr 2013 18:27:14 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10609481-frustration-and-confusion#10622840 Thank you so much for responding to me. So far I am not having any luck with the meds that he has placed me on. But It has only been a week or so. I have more sores around my hairline and my hair is still falling out. I am about to call my doctor because I am starting to freak out a little. Thank you for this group!!... Tue, 16 Apr 2013 10:05:41 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/introductions-personal-stories/10598523-new-herehoping-for-help#10600414 Woah! You have had and are having alot of health problems. I don't know what it is that is causing this, but I will say that I feel for you and pray you find relief. Keep on keepin on!... Sat, 06 Apr 2013 01:23:27 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10597950-recently-diagnosed-need-advice#10597950 Well! Welcome!-to our world. My suggestion is to explain to your family-chilren-that you are not feeling well right now and need their help. You will be suprised at how well children will want to be of help when you tell them you NEED them! God speed in your flare my dear!... Thu, 04 Apr 2013 21:45:00 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10476617-lyme-lupus-fms-or-what#10588314 :s Sucks to be on the rollercoaster of no diagnosis. My little bucket of possibilities! As I like to call it. And until they figure out what is wrong, the right meds combo is out of reach. I've heard lyme is bad when you go thru the detox part of it. Or the killing of the lyme critters as someone told me. ;) Keep trying to figure it out and I hope you do finally get some kind of answer no matter what it is. Good luck and hugs.... Sun, 31 Mar 2013 14:23:02 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10573508-18-and-sick#10587636 Hi..In the beginning everything is scary. After a while you do calm down, even though some days are aggravating, and just live. I hope that you have gotten a second opinion on your diagnosis too. Just to let you know my Aunt is 77 with Lupus (had since she was 14) and a good friend of the family is 82 with FM. So life is doable. They are my role models for a long time. BTW it is okay to cry every now and then..just get it out and refocus. Then move forward. Hopefully, there will be a cure someti... Sun, 31 Mar 2013 07:25:09 -0700 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10524544-daughter-just-diagnosed#10537940 So sorry to hear about your daughter dealing with these issues so young. My Mom has had Lupus and RA for 30+ years and I got formally diagnosed at 30 but started having symptoms in my mid 20s that I managed for a few years with diet and exercise but then it got way out of control in the last 18 months. My hormones definitely make things worse and the best thing I did for myself is use a Nuvaring constantly so I don't have to deal with a monthly cycle or hormone fluctuations that always flared mi... Sat, 09 Mar 2013 22:00:04 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10524331-hi-everyone-im-new#10537936 I never went the herbal route...never heard enough proven to make me a believer except vitamins d and b complex. If your sle is controlled well the fatigue usually lessens or at least that's what seems to happen to me....good luck :-)... Sat, 09 Mar 2013 21:53:58 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10508829-new-to-group#10537934 Hey there, this is a pretty quiet group but the people are awesome :-). If it weren't for the people here and the regular lupus forum I would have been lost when I got first diagnosed last February. Its been a roller coaster of a road but feel free to contact me directly of you have any questions.... Sat, 09 Mar 2013 21:50:34 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10484656-depressed#10487410 Ive been in a funk before too and wondering where the light at the end of this tunnel. Its hard to pull yourself up and trudge through the day in pain pretending like life is just dandy. ...I use some Prozac to keep me a little calmer and it seems to help. Im PMSing and in lots of pain the last few days so I get it!!! Welcome either way, I'm usually a little more pleasant :o)... Fri, 15 Feb 2013 23:38:21 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10363664-new-have-lupus-mastocytosis-and-ptsd#10454791 ptdsteacher- I've been keeping an eye on your post and see that you're not getting much of a response. I'm sure it's probably because members can't relate to your mastocytosis. Sorry about that.... Sun, 03 Feb 2013 17:51:36 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10415325-medical-tax-deductions#10417548 Thank you! I need my visual field checked every 6 months due to taking plaquenil. It is a $50 charge each time, so I appreciate the info you have given. Thanks again!... Mon, 21 Jan 2013 21:48:55 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10389720-im-new-to-the-group#10409762 Thanks for the feedback....its always something but hey thats part of dealing with it!... Sat, 19 Jan 2013 03:50:31 -0800 http://www.mdjunction.com/forums/fms-lupus-discussions/general-support/10391218-pains-from-fibro#10405892 Wow, it's almost a week later and I'm just now posting. I do apologize. I hope you're feeling much better today. I love your positive thinking. Those of us who have a bunch of medical issues... positive thinking is key to our daily success. Keep hanging in there. And, we'll be here for ya! ~hugs~... Thu, 17 Jan 2013 16:08:41 -0800