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Fibromyalgia Teens Support Group
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01/29/2012 05:46 PM
graphicgeek
Posts: 3
New Member

I would just like to start out by saying that my name is Hannah. I have had symptoms of FMS since I was roughly nine or ten years old. It started with my ankles aching and my muscles being super sore and everyone just said that it was only growing pains. I accepted my pain as only that. A few years later when I was about 12 or 13, my knees hurt so bad that I had to quit my love for running cross country and track. My orthopedic doctor just passed it off as ligaments that were stretched out too much, and that physical therapy would help. Well it didn't. At that point I kind of just gave up on doctors. It was my 8th grade year in Jr. High School when I started having migraines. (Actually, today is my two year anniversary for having migraines.) This is all when chaos really started to enter my life. I've had MRI's and XRAY's and they all showed up with nothing. Doctors just passed me off, saying 'they didn't know what was wrong with me, so maybe this one does.' Spring of that year, I entered into the neurology center of Children's Hospital in Ohio. They have actually been pretty helpful, but I still to this day have pretty bad migraines all the time.

Summer of that year, I started having some severe pain in the joint of my hips. Family doctor: go see an orthopedic doctor. Ortho doctor #1: see this hip specialist after an MRI. Ortho doctor #2: Take these pain meds and let's inject you with steroids. (lemme tell you, that really sucked.) Well, that didn't help, so let's pass you off to yet again another doctor. Rheumatologist: Let's do blood work and see what we can work with. Looking at blood work, nothing's wrong with you. (He supposedly did the pressure point test, but to be honest I think he just did it to shut my mom up and say that I did not have FM) I don't know what to do with you, so you're on your own.

Well it wasn't until about a month or so ago that I actually got somewhere with this. I have, for about 9 months, been having botox injections in my head to relieve migraines. They are actually really painful for me, and if you're ever thinking about going out and doing this for beauty, just don't. It sucks. Anywho, I was having some anxiety with these injections and my neurologist referred me to the pain management clinic branch of Children's Hospital. I was thinking, 'well great, another doctor to pass me off as a hypochondriac.' I went into this doctor's appointment thinking that this dude would believe I was just a complainer. But he kept asking what all hurt on my body and asked about previous aches and pains. It was like a lightbulb went off in his head. He performed the pressure point test, and out of the nine that he tested, all of them really hurt. Only thirty minutes into this doctors appointment, and he has an actual diagnosis for me. To be honest, I'm actually relieved. It's great knowing that every little thing that I had visited my family doctor for (except for the occasional sinus infection) was all one thing. Everything linked together.

So that's basically my story in a nutshell. My name is Hannah and I have been diagnosed with FMS for roughly a month now.

Age symptoms started showing: 9

Age Diagnosed: 16

Reply

02/02/2012 04:12 AM  Top
Mandieluvsdogs
Mandieluvsdogs
 
Posts: 744
Senior Member

Welcome Hannah! My name is Mandie and I am one of your group leaders. I am 20 but I got fibro when I was 15, was diagnosed at 17 and am now living with it at 20. Chickiepoo, our other GL should be stopping in to tell you the group rules but I'll just let you know now. You can find our group policies in the fibro teens need to know (or something like that lol!) and if you would like to read some storie about us and where our fibro journey began, stories from the heart is the place to go!

Welcome!

<3<3<3 Mandie <3<3<3

i am not a doctor but i watch one on TV!
ADHD
Asthma
Blind in left eye
Depression
Diabetes Insipidus
EDS
Hypothyroidism
IBS
Juvenille Fibromyalgia
Optic Nerve Hypoplasia
Panhypopituitarism
Raynauds
RLS
Sensory processing disorder
Self-Harm
Anorexia B/P Type
EDNOS
Depression

02/04/2012 08:54 PM  Top
chickiepoo
chickiepoo
 
Posts: 668
Group Leader

Hannah,

Welcome I feel your pain! My story is on the stories from the heart link found in the forums, then under general & support. Mandie was right the rules are under general and support and they are called Fibroteens need to know. I too get migraines since age 17. That was the year I was diagnosed. I got fm at age 12. I hope you enjoy our little family here. By the way I am 38 now and a group leader here. So far my kids are fm free which I pray never changes. I haven't been on in a while because I had surgery to break up a kidney stone and face another 1 or 2 more. If you need anything don't hesitate to personal message me.

Love ya,

chickiepoo

"Fibromama"
Fibromyalgia, Poly Cystic Ovarian Syndrome, Kidney Stones, Migraines, Pelvic Floor Tension Myalgia, Asthma, Arthritis, IBS, sleep apenea
I am not a doctor so please don't take my advice as such.

Previous discussions I participated in:
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Im new here
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