MDJunction - People Helping People
 
Ask a Question
08/15/2010 04:24 PM

Hi everyone! New to group

LionforLamb
LionforLamb  
Posts: 35
Member

Hey everyone! I joined, or should I say, registered on this site many months ago but until now I've just been reading thru various posts. So I thought it was about time for me to introduce myself.

I am a 30yr old guy now living in NJ. I have a wonderful fiance with our wedding finally taking place Oct. 30th (after a 2 year engagement period).

I was dx with FBS in early 2008 after years of not knowing what was wrong with me. I had suffered from major depression for about 18 years prior and had been on a wide range of antidepressants for over 10 years at that point. So a neighbor referred me to a specialist who he said was good, and off I went.

That doctor confirmed the dx on my first visit. He had the greatest "bedside manner". Took his time, answered all questions I had, so on and so on.

Eventually I had lost my insurance coverage as I was completing my MA and only working pt. Knowing I had little money, he worked with me to first lower his rate per visit, then by working to find the most cost effective medication.

He started me off slowly. Oxycodone, probably 5's or maybe 10's. Briefly he switched me to Hydrocodone. Then back to a stronger Oxy dosage. For about a month, after I returned to ft work (and waited their 90 days), he put me on Fentynl. Then increased the dose. After loosing the insurance while changing jobs, he put me on morphine........

You can guess where this is leading.

I felt great overall, I have to admit. Besides having NO libido (later found out my T level was that of an 80 year old man). I was regularly taking a minimum of 160mgs a day.

The way this office operated was they allowed the patient to come into their office for refill rxs two times followed by a visit with the dr. (of course they charged $20 per "refill" visit). They also proudly promoted their online site, on which you could order refills of certain medications (not controlled substances), as well as set your next appointment.

After about, oh, 10 days or so into my new bottle, I visited this site, checked my work calendar, and chose a date for my refill appointment (which they only did on Tues morning or Thurs evening). The date I selected was about a week early, before I was set to run out. But I had wanted to have the Rx in hand before I ran out (especially since almost every pharmacy by me did not carry that dose in stock, requiring 3-5 business days to order and fill).

I received both an email confirmation of the appointment, as well as a phone call on the day prior. So that morning, as usual, I headed up to the office. Literally 5 mins before I arrive at their office, someone from their office called and, quite rudely, told me it was waaaaay tooo early for me to come in and that the Dr would NOT write the Rx. I panicked. I had gotten into the bad habit of, after my appt was confirmed, counting up the number of pills I had left, divided it by the number of days remaing, and took that many per day. I had done this a dozen times before with no problems.

So here I was, with one pill left, not knowing wtf to do. I called back, and this sweet Dr I had been working with for years turned into just another.....

He said that if the withdrawals get too bad, go to the ER. But in an angry, nasty way. Of course that wasnt an option with no insurance....

So I knew of this "quack" dr who would write a prescription for just about anything you ask for. I called up and made an appt for that day. On the ride to that office, I decided enough was enough. Time to stop. Not knowing what else to do, he wrote me an rx for methadone. Thankfully I was only taking a relatively low dose for about a month, until my new insurance started. I knew my psychiatrist was authorized to prescribe suboxone, something that I had already learned much about thru work, school, etc.

Loooong story short, after fighting off the horrible wd's after starting Suboxone (I had taken 30mgs of methadone the day before), I ended up on a 24 mg a day (three pills) deal. Felt great, no problem.

Then I was laid off from my job. I was told my benefits would expire at the end of the month (about 14 days). Panic. Found out about Sub's "Patient Assistance Program". Mad dash to complete it and have my Dr fax it in. Got the card 3 days before I wouldve run out. Phew!!

BUT on a final note, I have to say that of all the medications Ive ever been on, there is one that I absolutely LOVE. Provigil. Non amphetamine based stimulant. I managed to squeeze in a 90 day supply mail order before my coverage expired. Now I'm working on THEIR assistance program.

Its not that its "euphoric"...I just feel myself again. I have the energy to be a normal person. Ive cut back on almost all my other meds since (except the Suboxone).

Oh, one last thing I forgot to mention. My fiance was recently dx with Bipolar 2 and is on Cymbyax. Shes not the same. Too subdued, for lack of a better word...Im starting to get very concerned for her.

So, with all that said, thank you all for reading and if anyone has any comments, questions, suggestions, etc, that'd be great!

LfL

Reply

08/15/2010 10:25 PM
AutumnSunset
AutumnSunset  
Posts: 1262
Senior Member

Hi LtL, and welcome to our site!!! Wow, it sounds like you have really had some ups and downs, so to speak! But I'm glad to hear that you are doing better now. And I hope your doctor now is more reliable than the other one! Talk about Jekyll/Hyde!! Unsure

How much Suboxone are you taking now? I've been on it since September 09, usually 2 2mg daily. During flares, I sometimes increase to 3 daily, then drop back to 2 daily when the flare eases. I have not tried Provigil, but have heard about others who respond well to it. Glad that it is working for you!!

Congratulations on your upcoming wedding!! My son is also getting married in October! I am sorry to hear about your fiancee's problems; almost sounds like the med and/or dosage is not quite right for her. Hopefully she will adjust before long.

Glad to have you here. Our group is not very active because so many of our members feel better and actually feel like doing things other than just being online all day. Wink And that's great news!!


08/16/2010 05:35 PM
LionforLamb
LionforLamb  
Posts: 35
Member

Hey thanks for the quick response! What groups aremore active? Just curious Smile

I started off takin two 8mg-2mg first thing in the morning for the first week (during the horrible withdrawals), then he increased it to three 8mg-2mg, which I am currently taking. I started takin it sometime around the end of June. Yes, thats right, I remember now (finally, I can actually remember things!)

July 3rd was my father's surprise birthday party at my sister's house. It was a Saturday and, being July, very hot. I remember being right in the midst of wd's at the time. I think that was day 3 of being on the two a day treatment. So, yeah, I officially started at the very end of June and began taking three 8mg-2mgs on July 6th of this year.

I was prescribed Lyrica but, since my insurance has expired, and because of the side effects, I'm titrating myself (the Dr knows and told me how) off of it now.

Other than that, I'm taking 90mgs of Cymbalta (down from taking 120 for over 3 years-and I want to lower it to 60 soon too); the Provigil, as I mentioned in my first post; generic thyroid medication; clonazapam 1mg as needed; and tizanadine (generic zanaflex) 4mgs-as much as 12mgs in the evening/night as needed.

Other than that, its just a half dozen bottles of vitamins and supplements.

MUCH better than where I've been, what I've done, and what I've done to get it.

Thanks for listening (reading) lol

Lion


08/17/2010 11:48 AM
AutumnSunset
AutumnSunset  
Posts: 1262
Senior Member

I'm so glad to hear that you've experience improvement recently! It is nice to be able to remember some things again, isn't it? I know it is for me!! Wink I have done so much better since I started Suboxone - still a long way from being "normal", whatever that is now! I too take a lot of supplements. I'm just thankful that I'm not in constant pain, like I was last summer. I never tried Lyrica because it is in the same "family" as Neurontin, and I had some major problems with it.

The regular Fibromylagia group is probably the most active. This group was started to try to keep in touch with the members who began taking Suboxone and to see how it affects their lives long-term. If someone is interested in trying Suboxone, hopefully this site will provide helpful info for them.


08/17/2010 05:34 PM
LionforLamb
LionforLamb  
Posts: 35
Member

Hey thanks! I'll check out that main page, maybe be able to offer some "advice" to those recently diagnosed. Maybe even browse around the other groups, since, like all of us, there's alotta other things goin on with me, both mentally and physically. See you around!

Lion


08/25/2010 10:19 PM
justkeepgoing
justkeepgoing  
Posts: 808
Senior Member

LION, WELCOME TO THE GROUP

Smile

Reply

Share this discussion with your friends:


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved