MDJunction - People Helping People
 

Why wear a ribbon?

  "For my father who has COPD" (darkangel229)

MDJunction to me

jaguar62"Here's a success story for you ,, there was this poor guy who all he ever did was work his butt off day in and day out, and would settle for no less than perfection which caused him to somewhat be an outcast among his peers.

But then people around him started to notice that failure wasn't an option and this guy could really get things moving in the direction they were supposed to go so when they had an issue they would hesitantly ask for assistance at first.

But as time went on more and more people started getting referred to him. Before you knew it he was recognized and he had a top executive job,Escalation Supervisor of the whole Eastern Coast of United States for a communications company was staying busy like he loved to do and helping people along the way and life was excellent, good salary and benefits ,loved going to work "everyday".

Then one day (it was a period of time ) it was over ...seemed like it disappeared in an instance (after being diagnosed with Parkinsons Disease at the age of 49) and it stayed that way forever it seemed and life was slowly deteriorating around him ..depressed , no motivation, no job, health issues getting progressively worse much faster than just Parkinson and then being told it has possibilities of being MSA (Multiple Systems Atrophy) well seeing as i wasn't working i started checking out sites online and just so happened on MDJunction and the Parkinsons Support Group and absolutely loved the forums and feed back from the GLs and found out it wasn't just poor me at all, it was lots of wonderful people who shared the same symptoms that i was and still am going thru every day but in a whole lot better more positive frame of mind . So after about a year of posting and reading the forums daily and meeting so many good people I knew i wanted to give back some of this well needed love that i had received , So I applied for a Group Leader Position and ...

I had a "new job" and its helping people as well as getting the necessary help I now require and I can do it 24 hrs a day if i want to ..HOW GOOD IS THAT .

THATS MY SUCCESS STORY/Testomonial
OH Yeah!I almost forgot the best part is the wonderful fellowship around the workplace,,

MDjunction has opened my eyes and offered me a new beginning to what was looking like a very dark end. thanks MDJ (and yes i do know where I would be without you.)
" (jaguar62)

more testimonials
Fibro Mates Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia in the Family, together.
Join This Group
Group Home   Forums   Articles   Members (255)   Diaries   Videos   Leaders   Guidelines
Fibromyalgia in the Family Group RSS Feed
05/20/2012 06:51 PM
SFisher
SFisher  
Posts: 2
New Member

Sad I am 27 and a new FM patient, my husband is 3 years younger than I am and he is having a VERY difficult time with this and I need help on how to assist him to understand.
Shai Fisher
Reply

05/23/2012 08:38 AM  Top
Annelle
Annelle  
Posts: 192
Member

It's a tough thing to try and get people to understand. My boyfriend is understanding, but he still has a hard time understanding what I'm really going through and how it impacts every thing about me. He worries because I'm not getting out much because I'm working and prefer my weekends to be quiet, relaxing and a time for regeneration. Basically, I sit in front of the TV resting a lot and he worries that I'm depressed.

The best you can do is be patient but also sit him down and let him know that it is really important to you for him to try and understand. If he cares about you, he will do his best. But he's human, doesn't have Fibro, and male....so you might need lots of patience. Wink Let us know what you need!

Annelle


05/23/2012 11:04 AM  Top
SFisher
SFisher  
Posts: 2
New Member

Thank you so much for the words of encouragement! I will do my best, I just wish we had a place for spouces to talk these thingsout too!
Shai Fisher

06/02/2012 09:32 PM  Top
davesprettylady

http://www.butyoudontlooksick.com/articles/written-by- christine/the-spoon-theory-written-by-christine-miserandino/

I suggest showing him that article ^

Also, in the regular fibro support group there are all kinds of resources on how to talk to your spouse about what is going on. You're spouse is welcome to come on here and talk too!


05/29/2013 09:08 AM  Top
sabrecat
Posts: 3
New Member

Hi,

I am a husband who's wife has been diagnosed with FM. I posted this a few weeks back,

Spouse to Fibro sufferer - New to Site - caregivers fatigue

With that, I can tell you that there is no way anyone that does not actually suffer from this disease will ever understand it the way you as a victim of FM do.

Its like, you cannot understand going through basic training for the military unless you have actually been through basic training. You cannot understand what combat is like unless you have been in combat. You cannot understand what its like to fly or scuba dive unless you have actually done those things. He will never understand it at the same level that you do, but that does not mean he cannot be sympathetic, or that he cannot be helpful, or that he cannot be supportive.

He should do some reading about this disease to help him understand how it can affect you, and though he cannot understand it the same way you understand it, hopefully by learning how this disease affects people it can help him understand what he can do to help you, and to help himself.

I wont lie, this isnt going to be easy on your marriage, but as with all things in a marriage, communication is key. Dont shut him out, and encourage him to share his feelings too. You may even want to consider counseling if you dont already have good communication.

Good luck to you both.

Reply

Health Topics: Fibro Spouse
Share this discussion with your friends:
Members who viewed this page also read:


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved