Fibro Mates Support Group

Post edited by: chuckles0420, at: 03/16/2011 03:10 PM

Post edited by: chuckles0420, at: 03/16/2011 03:11 PM

The first thing I want you to know, is that you are not, by any strech of the imagination, alone. My fiance suffers with fibro and it has also taken a huge toll on our relationship. I know that it is sometimes much easier to ignore the problem than it is to admit that it is there and come to terms with it. It is easier to throw yourself into your work until you are exhausted and then have an excuse not to be emotionally involved (I am quite guilty of this myself, but it is a process). There is a very good article written by Naddya about Chronic Illness and the 5 stages of Grief. It can be accessed via the articles tab at the top of this page. Another good resouce would be the letters that are found here http://www.mdjunction.com/forums/fibromyalgia-in-the-family- discussions/introductions-personal-stories/825264-to-my- family Also, this article and the entire website put chronic illness into a bit of a different perspective; http://www.butyoudontlooksick.com/articles/written-by- christine/the-spoon-theory-written-by-christine-miserandino/

I think thats enough bombardment of information. You must really love her to be here. I'm glad you are, and I'm praying for your whole family to be healed.

- Jen

P.S. Please feel free to PM me anytime

I came here to see if I should share this portion of the forums with family and friends. (By the way I tend to blather on and in the other Fibro groups rant a bit, sorry about that.)

Fibromyalgia is hard to understand but it is not your fault. It is hard for us and our doctors to wrap our minds around.

Another good forum on this site is Fibromyalgia Support Group. There you can read about what is going on and join if you wish. It is hard to read about sometimes but it may prove helpful. We can even use your viewpoint.

Medically speaking our symptoms and stories are the same yet very different. This is sometimes referred to as a "personal" illness. What helps one person may not help another whether Rx's, vitamins, exercise, physical therapies and so on. Our symptoms are all over the map and what some might get others do not and they differ in intensities or what sets them off and really there is usually no reason for them to even happen.

There is no cure and thought to be a Neurological and/or Central Nervous System Disorder with Auto-immune Symptoms. I think this is the best "thought" to date. The Mayo Clinic has not pinpointed the cause so they cannot say what it is yet.

By all means stay on the Fibro Mates Support Group because they have a very important perspective that will help you.

A lot of us share this link with family and friends. It is from a Lupus site but is posted a lot in the Fibromyalgia Forums.

http://www.butyoudontlooksick.com/articles/written-by- christine/the-spoon-theory-written-by-christine-miserandino/

Take care of yourself too. This is hard on all of us. Take in information slowly, it is a lot and I don't want you to become discouraged.