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laciesmom
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Since I learned I had FMS, I have searched for info on this crappy condition. Web site after Website, the library etc. I have learned a lot, however, I just realized that in all my searching I have never read anything on the fear of pain. I'll try to explain. I've always been terrified of needles, and when I was little I had frequent ear infections and always ended up at the Dr or ER. Knowing I would likely get a shot sent me into hysterics before we even left the house. Anticipating the onset of my daily pain is just as bad. When I wake up without pain I'm grateful, but knowing it will come is terrible. When I have a project that must be finished, I'm in constant fear that the pain will become unbearable before I'm done. I really need to get a job, but the fear of being 2 hrs into a shift and not being able to stand the pain is awful. I've already been let go twice because I couldn't do the work. Basically, when I'm not in pain, I'm thinking about the pain and the anxiety level goes sky high. |
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Leonardy
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I know what ya mean.I keep saying I hope I die before my GP retires!When I was younger I was terrified of needles also,so much so that I nearly got blood poisoning in my leg from an infection from poison ivy I was hiding from my parents.I can't say when I got over my fear of needles, probably childbirth had a lot to do with it.When you're in so much pain you could jump off a bridge you'll do just about anything.Mineral baths help a lot, try some deep breathing in the tub with some aromatherapy candles.Yoga has helped a lot of people with anxiety about a specific situation,like stage fright.I don't know if you're on any anti-depressants or anti-anxiety meds, but this could also help as well as seeing a qualified therapist that deals with patients that have chronic pain or or debilitating diseases. I hope this helps. Debbie |
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angelblossom1963
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Ok well i understand how you are feeling and everyone else.see i have had it for atleast 6to7 yrs before i was diagnosed with it.but i have been diagnosed 3 yrs ago.the sad thing is ,that i did not listen to the doctor who diagnosed me with it.well i really wish i would of cause now im paying for it see i was still active in the last 3 yrs ya the dises was slowing me down but it was not terrably notisable yet.But in the last yr and a half started showing more and more symptoms 1ike......oh ya before i go on with this part of it i need to tell ya when that doctor diagnosed me with fibromyalgia i quit seeing her.and that was my first mistake.now ill go back and finish symptoms like stiffness,headaches,pain in my neck,anxiety oh my god i hate the anxiety it scares the crap right out of me.i just wanna die,for real,i mean i have always been told god never gives a person more than they can handle.I beg to differ this is way more than i can handle im telling ya all if you are not in lots of pain almost all day long,cant sleep, have anxiety,putting on weight,get horrable headaches,cant stand to be touched with out being in pain, i put it lightly for ya. if you feel like you got into a fight with a semi going 65 miles a hour then you can be you have fibromyalgia.I was tested for everything from artheritus to MS to lymes disease to lupus.im sure there was so much more i was tested for but im just not sure at this time.anyways there is nothing else to be tested for.but when i go into real bad pain i cry and my anxiety starts up.ya im on medication for the anxiety but when someone is in that bad of pain it takes more than a damn anxiety pill.im on other meds for it tom but i get very little relief.so has anyone ever done anything serious that you read of on here yet i hope not.somedays i feel like it tho.im so sick of worrying about this crap and im tired of going to be and wake up to it.i hope everyone who has this really really understands once ya got it its with ya to the end. ya.not only do i have that i now have something wrong with my left leg and hip.i mean what next for god sake,,,my prayers go out everyone who suffer with long term pain to. god bless ......sincerly...pmk...angelblossom |
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tsage
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Thank you for posting this message. I never made the correlation between having fibromyalgia and a fear of pain. I have always been terrified of doctors and especially dentists. My dentist has to give me novocain and gas (gas before the shot) for anything more than a normal cleaning. I avoided going to the dentist for over 5 years at one point due to my fear. I experience anxiety before I give blood or receive shots. I absolutely hate going to my OBGYN. My mom laughs at me because I tell her doctors will have to put me under for minor operations that normally require a local. I've been putting off getting a mammogram and dread the fact I will have to get a colonoscopy in the future. UGH! I understand completely.tsage May God heal your body and soul. May your pain cease, May your strength increase, May your fears be released, May blessings, love, and joy surround you. www.fmaware.org |
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kari
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Well I was a person who was pretty strong and could seem to handle pain, yea lol especially after two natural child births and two hernia surgeries, but after fibro I noticed I wasn't handling the pain as well. The pain was more intense. As time goes on it gets worse. The pain is more intense now than it was 5 yrs ago. They say this is not a progressing disease and that doesn't kill you, but it does get worse with other conditions showing up eventually and you just feel like you are slowly dieing. Well it sounds like at least one of you had a good doctor, as for me everything gets blown off onto my fibro and I have been mis diagnosed twice not to mention it took 8 doctors and a year to get diagnosed. I just recently was told by a doctor that I am over reacting, that I probably watch too much TV. I have severe anxiety but I am not given any med for it. I use to get it, now I have to find another doctor again. well I have realized that now I have developed a fear of pain. I dread getting shots or having anything done that I know will cause pain Even anything physical because I know its going to exhaust me a cause me pain and I will suffer for it, sometimes down for days. this is no way to live life. If there is a book out there regarding fear of pain especially when having a chronic condition, I couldn't imagine what it would say. I don't think there is an answer to this one. |
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laciesmom
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You sound like me. I always said "If it doesn't hurt worse than childbirth Im OK, and if it does, I'm screwed. My Dr. could give a shit. Shes not helped me at all (info wise) with FMS. Shes to busy worrying that I might become an addict. I'm not dure if the pain gets worse or if you just become exhausted from it. OH- my Dr thinks I do too much research. |
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kari
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I absolutely agree. Well considering the fact that I have been missed diagnosed twice and my concerns of my daughter's symptoms brushed off to later find she has autism leaves us no choice but to research. If I didn't we might still not have been diagnosed. Seeing that they don't know their ? from a hole in the ground. In fact I was told that the test that were performed for me in the past by any doctor was just to make me happy (basically to get me to shut up). I have left feeling stupid but then when a test came back and showed something they looked stupid in return, but of course no comment was made on that. Well I need medication sometimes for anxiety but this doctor wouldn't give me any and said go see a counselor which he didn't even refer me to one nor did he refer me to a doctor that would help me with fibro, instead said find a support group. Any symptom that arises is blamed on fibro or see a psychiatrist. |
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Leonardy
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Your doctor sounds like a jerk.They should be so lucky as to suffer from pain and fear like this.My back and lower body are actually disfigured from too much time on the heating pads over the years. My doc says they are like tatoos and are permanent.Why would I do this if I were not in serious agony? I send many prayers and gentle hugs your way in hopes you find the comfort you need SOON! Deb |
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kari
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Thank You, that means a lot Kari |
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kari
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Well I got off track of the subject, sorry, but speaking of fear. I now not only have a fear of pain but a fear of going to the doctor. |
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