OK saw a doctor today- is anyone taking kolonopin?

dragonfly

Also, there are no proven therapeutic regimens that work for everyone, and results of their treatment efforts cannot be objectively quantified by lab tests, MRI's, bone scans, etc. and therefore not emotionally rewarding for the doctors, who are trained in the "scientific method" of causes and cures.

I read recently that about 50% of most rheumys' practices are made up of fibro patients, and most of those patients were foist upon them by family doctors, neurologists, internists, chiropractors, endocrinologists and other specialties. The rheumy's did not "sign up" for us because we are frustrating to treat, require so many different types of meds, they cannot understand what causes our symptoms and treatment for every patient has to be individualized. Also, they are reluctant to prescribe narcs for pain, sleep meds, depression meds, meds with "off label" uses for fibro (like Lyrica and Neurontin) because they never intended that to be a part of their specialty practice when they became rheumatologists. We are way outside of their comfort zone, and difficult to treat.

The "old" types of arthritis, osteo and RA and lupus etc. with lab markers to "prove" the condition they are more familiar and comfortable with because they studied them more in med school and residency, and there are fewer and more specific medications to treat these symptoms, often leading to a better therapeutic result (that is, a result that can be measured.)

Lastly -- and this is just my opinion -- most of these rheumy's have HUGE egos -- God complexes even! And for some reason, many of them have the personalities and bedside manners of warthogs, and that is on a good day!

p.s. I've only ever been to one rheumy in my life, and it was such a miserable and degrading experience that I have NEVER wanted to see another one! If you have a great rheumy, then you are one of the lucky ones!

This is why we can not give up. The more we push and show we are not going anywhere, then they will do more studys on fibro.

dragonfly

But we really need to get these rheumys in our corner too! I think it is going to be a process, but we will get there because we don't give up!

dragonfly

Cheers to everyone who doesn't have to take meds. But as for me I don't know what I would do without them. I do not abuse them and take them as directed and they help me to function and make me easier to live with.