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04/18/2008 13:32
puddles
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Hi kEveryone,

I think that I posted this question in the wrong forum so here I go again.

I am seeing a FMS Specialist next Thursday and I was wondering what type of questions I should be asking? I have just been diagnosed with this and I am still trying to wrap my head around it. I am at a loss....if anyone can lead me in the right direction, I would truly appreciate it very much.

Thanks

Puddles

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04/18/2008 13:39
teri hayes
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i don't know what the right questions are. i just ask what am i supposed to do about it. i think the questions depend on where you are in the disease. when one pops into your head write it down and give the list to the doc. i do know that there are no stupid questions.

good luck and let us know how you make out. and don't be afraid to ask us these people can help as well, because i always walk out with more questions then i went in with. i also take my husband with me because he doesn't suffer from fibro fog or anxiety so he will catch what i miss.

teri

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04/18/2008 13:59
psk
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Make sure to ask whether ALL the treatments are covered by your insurance. Hate to be a downer, but I had an appt. scheduled with a fibro clinic. I had specifically asked whether they took my insurance, and was assured that they did. I then went on their website where it clearly stated that the consult & labs were covered, but many of the treatments and suppliments were NOT. It would have cost thousands. When I called to cancel the appt. & complain about the misleading info, the receptionist accused me of putting a pricetag on my health.

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04/18/2008 13:59
coolmamma
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Puddles, I think Teri is right...whatever ?'s pop into your head, those are the right ?'s to ask. Do you have any literature on fibro? Have you gone to the fibro info sites? Like fmaware? You can google fibromyalgia and pick from what pops up. It might be a good place to start.

I have had fibro for 17yrs now (result of work injury). I think the most important thing I have learned is to take good care of myself, which includes finding the right balance of everything...pacing yourself, eating right, exercising some, resting enough, etc...basically not giving so much of yourself to others that you forget to save something for yourself. (This is my tendency. ) It's difficult to ask for help sometimes, but we all need it whether we like it or not. If you have an understanding doc (which I hope you do) they will be patient with you and recognize that you need them to be a partner with you in taking the best care of you as possible rather than them telling you what you have to do & that's it. I hope I am making some sense.

If you have further ?'s, you can always PM me as well. I will do my best to help you any way that I can.

Sending loving gentle hugs your way....{{{{{HUGS}}}}}

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04/18/2008 14:01
coolmamma
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Oh, I also forgot to mention....If the doc prescribes you with a med or meds, make sure you understand the side effects & what they are trying to accomplish. I would also suggest sharing the med info / advice with someone that is close to you so that if you need help they know where to go to get the info. (I keep a list of my meds available for my hubby that is current so that if something happens to me, he can hand it over to the appropriate person helping me.) This is just some practical advice I have picked up along the way.

Sending you more hugs.....Let us know how your appt goes!

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04/20/2008 16:45
LibraJo
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Puddles,

Coolmamma brought up a good point about the medications.

Another thought, some of the meds can be costly & you also don't know how they will effect you. So, try asking your doctor for samples before you fill the prescription if the doctor gives you a prescription. See if the doc will give you like a 2 week supply or more.

Good luck with your appointment.

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04/24/2008 17:36
puddles
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Hi everyone,

Just recently got back from seeing the Fibro Specialist. Wow, was he wonderful!! He spent a total of an HOUR AND A HALF with me!! Can you believe it!! I wish you all had access to him as I do. He even told me that I could call and see him ANYTIME I needed to. He did give me a sample for 14 days until I could get to my doctor for a prescription. The specialist wants to make certain that my body can deal with it.

Has anyone heard of or uses: Ralivia

He is giving me 200 mg to start. Once a day every day. Would like to hear your take on this drug.

Interesting enough: The specialist told me to "check out" the Fibromyalgia Support Group on line. The one he suggested, was THIS ONE!!! I feel so happy right now! Having anyone, believe that this does exist and the chronic pain is indeed real........is a great day to celebrate!

Soft hugs to all!

Puddles

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04/24/2008 18:02
Red2
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Hey puddles!

So glad your appointment went well!!! Finding a doctor you like is REALLY wonderful!! Sounds like you had a productive visit. I have not heard of Ralivia...but I bet some others may have. I hope it works for you! You will have to let us know if it helps.

How funny he recommended THIS support group!!! I knew we were a wonderful group of people I'm so happy that YOU are so happy!! Thank you for sharing the good news!

Hugs to you too!

Red

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