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FMS Community FMS Support Forums Medicine & Treatments IMPORTANT ARTICLE RE: B12 deficiency and FM
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04/17/2008 12:53
DaniBelle
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If you all didn't get a chance to read this article which came out yesterday...PLEASE read it. I am having a bit of hope now. Wouldn't it be wonderful if we all could get a B12 shot each week and be FM free (or at least much better). In a previous post, I had stated that when my FM was at its worst, I drove to my PC and said "Please make me feel better...I need energy to even walk upright!!". I requested a B12 shot. Within 40 minutes of the injection, I felt like a new person. I went home and did some things I'd not had the strength to do (and couldn't work through the pain). It lasted until the next afternoon. It was great. My PC won't give me regular injections unless my blood shows B12 is too low....not fair! Anyway, I'm excited, and hope this proves true! Here is the website: www.immunesupport.com/ep/EP041608W
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04/17/2008 13:08
Tuffy
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What a great article...thank you for this. I give myself B12 shots once a month. I was diagnosed with pernicious anemia many years ago, so hence the monthly shot. I personally don't see a difference in my energy, but that may be because I have so many other ailments. But if this will help someone, then thats great!
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04/19/2008 04:20
auggie
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I WAS told by my DOC that the blood work most docs look or will not show or raise a red flag -- on things like b12, folic acid, and like tuffy i had a form of iron defficiency - it turned out that while i would not register as anemic by most generic blood standards i was "scraping the bottom of the barrel" for the type of iron that muscles need and they put me on an OTC iron supplemnt called maybe "furon" (?) and add'l supplements. HUGE difference in energy!
".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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04/19/2008 05:30
JustAnnie
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Its funny that you mention B-12 with fibro. I say that because befpre I was diagnosed (maybe about 2 years ago) one of the neurologists said I was losing blood somewhere in my body (just by doing my blood pressure sitting up and laying down) Anyhow I was admitted immediately to the E.R. there at the hospital and they ran several blood tests and other stuff. It came back that supposibly I am B-12 deficient (sp) and that my body seems to absorb the B-12.

I was given B-12 injection at the hospital and because I was in the medical field was sent home to do these injections myself. Im sorry I cant remember how often I did these but I know starting out it was an everyday thing.

At the same time I developed a nasty rash on my face and neck. I was sent to an allergist who (and I do mean literally) laughed at me for going to him and said How can you be allergic to B-12? And slapped me ith a bill of 92 dollars Yeah I was in disgust. Lucky for me I do my research and it does happen where some people are allergic to the benzoyl in the red dye of the injection.

Anyhow I dont take the shots now, no longer go to that neurologist, and have really no clue if he was right or not and they never found me to be losing blood while in the hospital. Oh and did I mention that B-12 is not easy on the wallet?

I am curious to know if anyone of you are or have been told you are B-12 deficient?

When the world says give up, hope whispers give it one more try... unknown
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04/19/2008 05:42
ALCSS2008
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I am B12 deficient. When I went to University of Maryland and labs were done my B12 was like 187 or something. It was considered moderatedly low and I was started on B12 injections. I take 1000mcg every month now. This is why I changed primary doctors. He has never had any labs drawn in 18 months of my illness. B12 is very important to the health of nerves and it may have played a part in my nerve damage that has not improved since the accident. I am also Vit D deficient.

I know B12 plays a big role in your energy level and I do feel better right after I have the injections. I too get them at home. It is too bad you were allegic to the dye.

Why did the atribute your B12 deficiency to a loss of blood in the hospital. The blood pressures you are describing are orthostatic BP and they can be like this is you are dehydrated also.

Are you levels okay now?

ccc

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04/19/2008 06:55
Nanaof4
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I was shocked to learn that my B12 level is just fine! I had NO energy whatsoever!

BUT, I had NO Vitamin D...almost 0!!! Then I learned that most Fibro sufferes are almost always deficient in Vitamin D. I started making sure I get as much DIRECT sunlight as I can with no sunglasses and no sunblock and taking cod liver oil in the winter months. It is much better now!

Also learned that vitamin D supplements aren't the BEST way to get vit. D.


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04/19/2008 06:57
ALCSS2008
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Can't get in the sun because of one of my meds.
ccc

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04/19/2008 07:40
Bkwrm398
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Can pharm. companies not make B12 without the red dye???
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04/19/2008 07:48
JustAnnie
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I am not sure if they can or not but I was switched to a pill called foltex. I take that now and have my levels checked every six months. Im not sure why that neurologist sent me to the E.R. Needless to say I moved and later found that he is no longer with that practice and he is somewhere in California.
When the world says give up, hope whispers give it one more try... unknown
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04/21/2008 19:44
abetterday
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I take a prescription B-complex vitamin called Metanx, for neuropathy. It's a combination of vit B-6, B-12 and folic acid. Here's more info:

http://www.webmd.com/drugs/drug-92562-METANX+Oral.aspx? drugid=92562&drugname=METANX+Oral

Bailey

The human spirit is stronger than anything that can happen to it. ~ C.C.Scott
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