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Diane6022 Posts: 6
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Hi! I am new to this site and this is my first posting. I have 2 questions for everyone. 1) Has anyone found much success with Savella so far? 2) Has anyone been on opiates for pain and then gotten off of the opiates? If so, how did you do it and what did you use to help the pain through the withdrawal process and afterwards? Thanks so much for any help you can provide. Diane |
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Auntie3285 Posts: 9086
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Hi Diane ~~~ Welcome to our group ~~~  I have not taken Savella but we do have several here either taking it at present or that have tried it and couldn t tolerate the side-effects. If you type Savella in the search box at the top right of this screen, it should bring up posts where we have discussed Savella. I also have never taken an opiate so apologize that I cannot be of help with that question there either. There are so many here fighting the bitter pain of Fibro ~~~ I m sure someone will be along before long and give you the information you re seeking. Marilyn |
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hatbox121 Posts: 10509
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First of all welcome to the group! There are several threads on here about Savella. Just type savella in the search box and there are alot of threads that'll come up. I haven't done the opiate thing either. I'm sure there's someone here who can help though. Boy I wasn't any help. Sorry. Any way welcome to the group. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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Diane6022 Posts: 6
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Thanks to both of you. I will look up the Savella threads. So, I am curious, what has helped you? |
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Auntie3285 Posts: 9086
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Diane, I have taken Lyrica for over 1 year now and it works great for me. However, I know there are several here that couldn t take that either or that it didn t help their pain. |
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mammy Posts: 7217
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Welcome to our family. We're so glad to have you with us. I'm sorry that I'm not going to be much help either. I do take pain meds but I have other conditions so I'm on quite a few meds. I've never tried the other med, my doctor does not prescribe it for his patients as there are too many side effects in his opinion but I wouldn't be able to take it anyway. I sure hope you will stick around,this is a wonderful group of people and you will find lots of support here. Most of the time you can even get your questions answered  Connie  Connie
I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice. |
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hatbox121 Posts: 10509
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As of now, nothing really. The cymbalta I'm taking is helping with the depression part but as far as pain....still looking. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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broken Posts: 9268
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HI Diane, I cant help on either but I would think on an opiet you would wean, But I wanted to welcome you.. we all have alot to give if one gets the help then some of this suffering is worth it..
remeber I am not a doctor I just say what I think |
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aTinaL  Posts: 11832
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Diane, welcome to our Wonderful World of Mighty Fibromites! I'm pleased to meet you. Savella I decided not to try after so many people started reporting such bad side effects. Instead, I tried something different, suboxone. It has completely kicked the pain aspect of my fibro. Interestingly enough, it's a drug that is used to treat opiate addicts and alcoholics. Only when it's used for fibro, it's a very small dose. My doctor actually did leave me on all of my other meds, including my vicodin. After about 4 weeks I had quit taking everything else, though, because the suboxone was working so well. I have had to take some vicodin the last few days because my back was acting up. Issues unrelated to fibro. I hope that you'll find what you need here in the group. Please do make yourself at home and post to your heart's content. Newbie hugs, Tina  Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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Hi Diane! I have not tried Savella, but do take Soma and Vicadin. The SOma really helps my muscles when I get those terrible spasms. SUmmer |
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