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03/16/2008 08:20
cadburry
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I have been complaining to my doctor for the past year and a half about the severity of my pain. I told her I need something for it. She did try me on Cymbalta, but it made me terribly sick.Then we tried Celebrex, but I never noticed any kind of a difference. She then sent me on to a pain clinic. The pain clinic tried me on Tramadol, a mild muscle relaxer, and an anti-inflamtory (sp?). This didn't help me at all, and then they stopped accepting my insurance.I then went back to my doctor and she said she would refer me to another pain clinic and thats when she mentioned Fibrmyalgia.She sent me home with Lyrica and told me to read about it on the internet.So I did. The Lyrica didn't help me, and I thought it really would.I called my doctor and she said to stop taking it and that they would speed up my referall to the pain clinic.

Unfortunatly for me I live in a state where the doctors seem to look at everyone as drug seekers or at least thats the general feeling they give me. My doctor doesn't evgen write out pain meds and so she has to send me off to the pain clinic.

I'm worried that I will never find anything to releive my pain.

I don't want to spend another momment in this pain, and I'm loosing hope rather quickly.

Part of me feels like asking my doctor is she thinks I'm some kind of drug seeker because I have been left to suffer for so long. I want to yell at her and say if I was seeking drugs first of all I would have changed to a doctor that can prescribe pain meds, and secondly I would have given up a long time ago.

Sorry this was so long. I really hope to hear what others went through even if that means stepping on the soap box.

I would like to know if others were made to feel like they were drug seeking and left to suffer with out any sort of releife? Or even just left to suffer?

I seriously don't know how long I will be able to go on like this.

If I don't get treated for my pain is there something legally I can do?

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03/16/2008 08:38
cadburry
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Is there something I can do within the legal system if I'm left to suffer?
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03/16/2008 09:02
heatherchelle_2000
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Dear Cadburry,

I'm sorry you're feeling so lousy. I have no idea what legal action you can take. But your experience is all too common. Unfortunately, the war on drugs has become, in many ways, a war on doctors and sick people. Doctors who give out pain medications too readily are getting into big trouble, so most doctors are becoming really skittish about giving us the pain medications we need. I had one nurse practitioner who refused to even discuss the subject of pain management with me. I didn't even mention the word drugs, just asked her if there was anything to be done about the pain. She freaked out, and acted like I was some kind of druggie! (Boy has she got me wrong-I usually have bad side effects with everything I take. I hate taking drugs!)

I would try talking to your doctor's boss, if there is one (hospital administration) and tell them what is going on. Mention that you're looking for a good lawyer. See what the boss says. If that doesn't do the trick, find a lawyer that specializes in health issues, malpractice, etc. and see what the lawyer says about it. We deserve to be treated better than you have been. I hope you get into the new pain clinic soon. Gentle stretching and hot baths help the pain a little. You are in my prayers.

xoxoxoxox Heather xoxoxoxox
Beloved Father God,
Help me befriend those who are lonely,
Help me comfort those who are hurting,
Help me do battle against the darkness,
And help me lead the way to You.
In Jesus' name, amen.


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03/16/2008 09:17
mommyofsixFriend2U
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Hi Cadburry,I am sorry that your doctor isn't very understanding. It seems to happen alot with Fibro. When I first started going through all of my surgeries and fibro pain I was sent to a pain doctor at the Mayo Clinic. He told me that he wouldn't give me pain meds. if I was dying. He thought that I was just out there to get drugs and possibly sell them. He was a quack! I go to the same Clinic but swithched doctors. The one I ahve now is grest. He really understands what I am going through and isn't afraid to give me narcotics. I was honest with them about having addiction problems many years ago. I was treated like a freak. I was honest with my new doctor but he watches my med. intake and we work together to make sure that I don't end up with a problem. [li]Have you thought of switching Doc's? Most people do not become addicted to pain killers. They become physically dependant. There is a big difference! The doctors are afraid to prescribe narcotics because of all the new laws and lawsuits. What did they do at the pain clinic? I am supposed to go to something like that for fibro at the Mayo Clinic. They call it a fibro pain clinic. I hope that I can figure out a way to go soon. This pain sucks[i]. I hope that you find some relief soon. Your Friend, Chris
Your Friend, Chris
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03/16/2008 22:25
Matafleur
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I know what you're going through and it's a double or even triple edged sword.

From some of your other posts, I gather you are on medicaid. Correct me if I'm wrong.

I have found that the way I was treated on regular insurance versus medicaid, is vastly different. I often feel brushed off, talked down to, rushed, ignored, and selectively treated as someone with medicaid. Doctors are often in a hurry to give me a prescription that conveniently isn't covered by medicaid or is OTC. They also seem to act like I'm not that bad if I don't want narcotics yet they are hesitant to give them to me.

It also seems as if they treat medicaid people as drug seekers more than those with regular insurance even though I know of a bunch of incidences where some regular insurance people hop from doc to doc for prescriptions they don't even need to trade with friends. I don't know if this is what you are experiencing, but it kind of sounds like it.

Dealing with finding good doctors is difficult, even worse when you have to re-establish with someone new.

As for the legal issue. Unfortunately, pain is subjective and difficult to prove which is why Fibro used to be considered a disease needing pschotherapy not physiological intervention. We're still battling that belief.

In order to sue, you need to be able to show damages.

Pain doesn't show up on medical testing. They can argue that they cannot treat something they cannot see.

Ask your regular doc for a referral to another rheumatologist, but first call all the rheum docs on your provider list and ask if they are fibro friendly, if they treat fibro patients, perhaps ask if you can make an appointment to just talk to the doctor in his private office (kind of how we check out pediatricians). Ask on here if anyone knows a good fibro doc in your area or do an internet search for Fibromyalgia doctors (your area). The following links might help in the search.

http://www.fmaware.org/site/PageServer

http://www.fibrohope.org/home.asp

I wish you the best. We're all here for you.

Post edited by: Matafleur, at: 03/17/2008 00:27


Popular posts by Matafleur
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03/17/2008 20:17
cadburry
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Thanks so much!
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03/18/2008 06:36
sweetheartsuzee
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Hi Cadburry,

I was like a guinea pig for YEARS before I finally found a doc that would LISTEN to me with compassion, run tests, try narcotics for the pain and come up with a 'concoction' that worked for me!

You're NOT ALONE!! Docs don't like to just 'hand out' drugs and that's exactly how some docs see it!! It's unfortunate for us that need meds to feel half way normal or to have a half descent day!

Keep looking, you'll find one that cares! It may take a while...but it's SOO worth it in the end! Really! I know it's hard to believe and I know the feeling of just wanting to give up...but you'll find one, so don't give up!

As far as legally...I don't know anything about that...but I do know that if you just hang in there (i know, hard, hard, HARD) but please do and you won't have to do anything 'legal' because you'll find that doc that's just for you!

Keep your chin up!!

{{{{Fibro Hugs}}}}

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!


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03/18/2008 07:14
hipmama42
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I agree with Matafleur about the "special" treatment given to Medicaid patients, as if we are some ignorant, lazy, inferior segment of society and don't deserve the same treatment as the private-care insurance patients. I am sooooo grateful to have any insurance at all, in fact, had none for five years, so I am lucky to have most of my meds and doctor visits paid for, but I am extremely limited in my choice of doctors and dentists.

There is only ONE rheumatolgist in my entire area that accepts Medicaid, and I know nothing about him, but may be forced to go there to get my tests run and a formal diagnosis for disability.

I lucked out with my family doc in that she does believe in fibro and spends a lot of time with me, also sees me as real person and not just another number in a "medicaid mill" practice like my dentist's office.

A group of orthopedic doctors in our area hold special "orthopedic Medicaid clinics" on Friday mornings. It's like a casting call for people trying out for a TV show. First come first served, 30 to 40 people waiting around in a cramped, dingy waiting room, waiting for our names to be called. On the first visit I waited three hours and was the last patient seen. Of course, you don't get to see the actual doctors from this practice, but residents and med students who "practice" on Medicaid patients. We are treated like cattle.

Surgeries, if needed, are scheduled whenever they can fit you in at their convenience, and if you can't make that day, well then, too bad, you have to start the process all over. I finally gave up on having knee surgery for torn cartilage.

Just ranting here....

I want to see a GOOD fibro doctor down in Canton and am trying to come up with the cash to pay for the visit, and I will have to get financial help from relatives. I'd rather see someone who knows what they are doing once or twice a year then to get frequent "free" treatment from docs who treat Medicaid patients like cattle and don't know anything about fibro or pain management.

The process of finding a good doc can be exhausting, especially when we don't have much energy to begin with!

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03/18/2008 23:03
PamelaG
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HipMama, I agree. 6 years here with no insurance. Monthly income is $649 for our household and they say we don't qualify for Medicaid. Bad thing in my area is NO insurance people are even treated worse than those on Medicaid. I'd much rather live here and have Med. than none.

Treatment for ANY of our conditions here in SW MO is like.....well....having your reg. medical Doc send you to Brain Surgeons because you have a splinter in your foot.....absolutely no connection, but the Brain Surgeons Office will have you come there 4 or 5 times before they finally tell you that they aren't the right 'kind' of Doc to treat you, but yet they have no idea either who can! UGH!

Thanks for the Dr link places, going there to check them out.


Pamela {please}

I wish tons of love and hugs!

Favorite sites besides MDJunction:
http://www.invisableillness.com
& the Fibro Store at:
http://www.cafepress.com/artisticability

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03/19/2008 04:29
ALCSS2008
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The only advise I have is don't give up, You have to keep fighting for your healthcare. Have you thought about writing your legislature? Your representatives are not that hard to get a hold of. I am using them in Maryland to help me with my disability.

I hope this helps,

Sandi

ccc
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