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FMS ForumsMedicine & TreatmentsCYMBALTA.... I'm nervous
04/30/2012 01:53 PM
laylalou123
 
Posts: 16
New Member

I was just given cymbalta to take and I start today. My doctor doesn't want to keep me on the oxycodone anymore and it seemed to be the only thing that helped me fight through the pain. I know people say that it doesn't help fibro patients, but I can honestly say it helps me sit through class, and stand on my feet for 7 hours at work. I just wish I was able to put the doctors in my pain and let them deal with the pain I go through everyday. I know my body and I don't think that Cymbalta will help because my body reacts horribly with every medication. I have yet to find a medication that I didn't have the worse side effects from besides oxycodone. Hell, I can't even be on Birth control because I turned into a crazy person. Is anyone in my shoes where they know what helps for them but the doctors don't seem to care?
Reply

04/30/2012 03:07 PM  Top
ChemGeek
 
Posts: 42
New Member

Yup, I have been there. Narcotics helped me when nothing else would and it is my pain doctor's experience that that is the case in her practice--everyone is different. This disease is simply too complex to simplify it to: Take lyrica and cymbalta. If it were that simple, there would be a cure.

Cymbalta was pushed on me to the point that I am convinced docs are getting kick backs for it. Don't get me wrong, I think SSRIs and SNRIs can be a good choice for pain, but they are not for everyone. They make me sick. I don't want to mask cancer recurrence pain. Ergo, round the clock pain control is not my choice. I found a doc that listened to that choice. I fired the rest. They weren't living my life. I made sure I actually fired the, too, by either calling and stating why or doing it as I looked them in the eyes.

Take back your power--this is your life.

I was not on oxycodone, but I was on vicodin. I am fortunate that right now tramadol works for me (for the most part) when I do need it. There was a time, though, where I really needed the vicodin. My current pain doc would put me back on vicodin in a heart beat if I asked. Quality of life is important. Being able to go to class and work is important! That's HUGE! If a medication helps you to do this, that is great! This is what my doc and I focus on: quality of life and how I define it. I am now able to socialize because I am not shamed by my med usage and I can mostly stay on top of the pain. Too many docs are shaming patients.

I think part of the problem is these doctors do not recognize that with chronic pain comes anxiety and months (and sometimes years!) of being treated poorly because of what we need to survive. People don't know what it feels like to want to cut off your own limbs because they hurt so bad.

I am a scientist (Ph.D in Biochemistry) and I read the medical literature on how narcotics don't work on fibro, but the studies are not convincing, and even studies about medications that are currently prescribed for fibro (lyrica, cymbalta) are not convincing. The bottom line is there is no statistically significant evidence to go either way.

Be open to trying something new but also explain your rationale: That quality of life is about going to school and being able to work. That you are afraid of side effects and site specific reasons. I'm sure you document your oxycodone usage. If the concern of the doc is getting you to round the clock care, there are extended release narcotics to try.

I don't think this should be an all or nothing situation. This is your life!

If all else fails, seriously fire your doctor for only give you the option of cymbalta and ask if he/she is getting a monetary kick back.

It disgusts me that more people don't understand that you don't get high from narcotics when you need them--you actually LIVE because you are not in such pain.

xo,
Mandy, 31 years young!

~*The greatest power in the universe is the power of decision*~

Dx breast cancer 12/2009
Dx myofascial pain syndrome 2/2011
Dx fibromyalgia 2/2012

Previous discussions I participated in:
School?
PLEASE tell me WHY????????
Home Remedies

04/30/2012 03:07 PM  Top
ssinnge
 
Posts: 409
Member

hi. Cymbalta was a god-send for me. It took away all my pain, I felt like I had died and gone to heaven. I was really upset when I had to get off of it though. After about 5 months on it, it started giving me very irregular heart rhythems, so I had to stop it. Give it a try at least.

04/30/2012 03:10 PM  Top
ChemGeek
 
Posts: 42
New Member

P.S. If you haven't done so, you can say you are more than willing to enter into a narcotics contract with your current doctor.
xo,
Mandy, 31 years young!

~*The greatest power in the universe is the power of decision*~

Dx breast cancer 12/2009
Dx myofascial pain syndrome 2/2011
Dx fibromyalgia 2/2012

Previous discussions I participated in:
School?
PLEASE tell me WHY????????
Home Remedies

04/30/2012 03:29 PM  Top
laylalou123
 
Posts: 16
New Member

Thank you so much for taking the time out and writing back to me. I already signed a contract when I first went to the clinic. I love having this forum at my fingertips whenever I need it because I get in horrible moods when all I want to do is cry from the pain. I don't personally know anyone else with Fibro so its hard trying to find people to relate with. I often feel i'm being judge because I am on oxycodone as an addict when I truly am not. I have never taken it other then my pain and I actually dread thinking about taking it because it makes me so tired, but, it takes my pain away.

04/30/2012 04:24 PM  Top
ChemGeek
 
Posts: 42
New Member

Yes, exactly--You only take it when you need it. There is a HUGE difference.

There may be something other than cymbalta to help you out. Be open to hearing all the possibilities, weigh the options, and ask your doctor for plans B, C and D. Be clear in what oxycodone allows you to do that you can't do otherwise. Be very honest, right down to the usual stuff we don't think to talk about with pain docs (i.e. sex life).

Patients need to feel they are empowered and that actually alleviates a great deal of stress and anxiety! We are more likely to make lifestyle changes to manage our pain when we feel like we have control.

Talk to your doctor about the shame you feel. Be candid. Say you are scared that nothing else will take away the pain. Say that you worry that you are being judged.

If your doc simply wants you to take a break because he/she fears you will develop a tolerance and if you need surgery, pain control will be an issue, then ask what can be done to facilitate a narcotic break (but not during finals week or a stressful time of your life).

These situations rile me up because I have been there. I hope your doctor is open to discussing all of this with you.

If cymbalta is a good choice for you--that is great! However, I wouldn't do a med switch during a stressful time of your life (finals, moving, job change...)

xo,
Mandy, 31 years young!

~*The greatest power in the universe is the power of decision*~

Dx breast cancer 12/2009
Dx myofascial pain syndrome 2/2011
Dx fibromyalgia 2/2012

Previous discussions I participated in:
School?
PLEASE tell me WHY????????
Home Remedies

04/30/2012 05:34 PM  Top
broken
broken
 
Posts: 9257
Group Leader

this is what I suggest honesty with your doc,I kindof had a same situation and took a page out of my grandmas book(make them think its their idea) what I said was doc Im scared this is working for me but Im affraid of addiction,what are the chances and since I will be on something long term can I stay on this with out problems? the reason this is a good way is because you are showing the doc you have concerns also..talk aabout options..I myself am on cymbalta but take it along with other things..if you feel like your doc isnt listening you need to find another one..I would try again and if no responce switch docs..I know with some insurances that can be hard..

I go to a physio doctor,many use pain docs or reumitologist..

I am glad you are finding the group helpful we always love to here that

we all have alot to give if one gets the help then some of this suffering is worth it..

remeber I am not a doctor I just say what I think

04/30/2012 06:34 PM  Top
hatbox121
hatbox121
 
Posts: 10502
Group Leader

I have the opposite problem. I have no side effects but I also have no good effects either on the majority of meds. I'm on tylox right now for after surgery(it's oxycodone and tylenol) and it does nothing for my back issues. The only suggestion I have is to keep a log of side effects as they happen so you can remember them when you report them to the doc along with having some one else close to you(if you can) keep an eye on any mood issues.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

05/05/2012 12:48 PM  Top
Shanti33
Posts: 17
New Member

I've been on opiates for about a year and it's been the only thing that has helped. The problem is that your body gets used to it and you have to increase the dose. I do have a doctor that is willing to give it to me, but I'm having such a hard time with constipation. If it weren't for that, I'd probably stay on the opiates. But I'm going to have to start tapering. I've just had such bad experiences with other meds that it makes me wonder why doctors are so reluctant about opiates. I know it can be abused, but not everyone abuses it and the pain is just unbearable. It can feel like a miracle. Opiates can make you feel pretty sick to withdraw from, but it's okay if you taper. The withdrawal from them is not nearly as bad as what I've had with short-half life anti-depressants.

I just posted a topic called Withdrawals. You might want to see my experience with Cymbalta. I don't want to scare you from it. I did have a horrible experience, but then when I went back on it and tapered it with another antidepressant, it was okay. A good antidepressant to use for tapering off short half life antidepressants is Prozac. It has a very long half life and is much easier to taper off of. So switching from Cymbalta to Prozac then tapering off that is the way to go when you have to stop and find you have trouble.

Personally, Cymbalta didn't help me with pain and it made me a bit nauseous. I didn't have any other symptoms with it while on it though.


Previous discussions I participated in:
Withdrawals?
Shanti33
Medical Marijuana

05/05/2012 01:51 PM  Top
kelly917
kelly917
 
Posts: 55
Member

@ ChemGeek i agree with you 100 per cent i do think these Doc out here are shaming us. every time i go to my Doc either he want to shoot me with some dam steroids in my leg or my back. i cant take those shot any more they don't do anything for the pain. i'm on Lyrica 150 mg 3 time a day. Hell i ask him when do he want me to wake up next year cause it put's me to sleep. i came to the fact that there is no medicine out here for Fibiro. WE ARE ON OUR OWN..
KELLY917
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Health Topics: cymbalta, Doctors, oxycodone
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