Fibromyalgia Support Group

I am on all those except the oxycodone. I've been to every kind of specialist out there. The poster above me is very lucky to never have been told all the horrible things we are told.

My neurologist, rheumy and the pain specialist refuse to help me. Nothing they 'tried' worked not even all the injections in my head, nerve endings and spinal canal.

Finally I found a good Dr who is helping. I am totally off the narcs, which is good. I still have flare days and days that I sleep day and night. Matter of fact I just came off a 3 day bend of sleep.

I hope you find a good Doctor. Ask up front how many patients they treat who have Fibro. What his/her action plan is.

Everyone is very different, as are the Doctors. I pray you find a good one soon!

I was sent to a pain mgmt doctor who does not believe in FM and won't treat it.

My Rheumotologist believes that I'm disabled but does not believe in narcotics for FM. In fact she said that I'm never going to get well or get back to work. So I'm just supposed to stay home and suffer.

Its Carrie again, OK HERE GOES I wasnt going to post about this tell I was sure I had Fibro. I am a addict. I believe because I have been hurting from what is probly Fibro for so long and because I do suffer from endometriosis I became addicted. I was doing the samething your friend was doing (iknowpain) Taking up a months prcript. in two weeks anyways now I am on methadone 100 mg. a day it doesn't do much for my fibro pain at all. I am on a pedisone pack right now which is why my pain is so much better now. Now I am freaking out because if I do have fibro know one is going to want to treat my pain and nothing might not help anyways because I have built up such a high tolerance to pain meds. Addtcion runs in my famlily which is why I was sooooooo worried about my 15 year old son becoming addicted (thank god he didn't) Plz dont be mad at me because of this its a disease just like fibro. I didn't start taking them for the high I was in pain the high was just a plus. Anyways guys you know I think you all are great and have been so much help to me. One week from tommorow I go to the Rhemy. Then I have to hope this Rhemy is not one of these dr's that doesn't believe in Fibro.

Carrie

Sleepwalking, I hope you are able to find a good Doctor in your area. Have you looked on here for Doctor referrals? There is a section for that.

Yes, at this point you are considered Disabled. And it will be ongoing. One thing you really need to do as soon as you can (if you haven't already) is get your application in for your Social Security Disability. It can take awhile. Most States (like mine) decline you the first time. Then you need to attorney up and have him/her appeal it. The attorney charges NO upfront fees, and only gets a one time percentage when you are approved, and it is sent to him/her from SS so you don't even have to worry about that. But the longer you put off applying, the longer it will be before you get it.

I know what you mean about the pain and having a Dr not believe in doing anything about it. When I did get a good Dr, he is managing me on my meds and the occaisional prescription strength Naproxin, and MaxAlt for my Migraines. They are only as needed now.

I will be praying for you my friend!!

Hi Pamela, yes, I have seen every doctor on the list in my area. My Rheumy is one of those on the list.... So much for the list.

I am lucky to have a good neurologist that looks out for me. Found him after having seizure because of drug reaction.

I filed for disability in May of 06...still waiting.....

I can kind of understand how people can become addicted to meds. They are hurting so bad and are desperate to find something that will help, if they do find something they will continue to take more and more just so they will feel better. I am not condoning it just saying that I can see how. I have always been very careful with mine and have insturcted my family that if they see that I am getting addicted to call my md asap.

Carrie, we would never judge you for being an addict. If anyone here does then they really don't belong here, we look beyond things like that and see you, the person.

Honestly even if you get a doctor who believes you have FM you may not get pain meds. They are so scared of the government now. It's a tough situation and I wish for you all the best.

Carrie, it took alot of courage to open up. I hope you can find a good doctor who will listen and help you. Hugs

Wow so much to add and even more to cut through.

First my experiences with pain management doctors has alway been horrible. At one point I had been to every one in the town closest to me. There were 7 of them I think. Every single one of them told me fibromyalgia dose not need pain management it needs a psychiatrist.

My GP used to specialize in pain management with n emphasis on firo. He is in complete control of my treatment. Well no I am in complete controls but he is the only one who advises me and prescribes me medicine. I told him about my previous experiences with pain doctors and he told me they are trained to treat fibromytes as drug seekers and a selected few disagree with that and do treat it.

Now Carrie, It absolutely took a lot of courage for you to open up and I think it is wonderful that you did. I agree with Casty that anyone who judges you for that does not belong here. You are absolutely correct. It is a disease and you either have it or you don't. I am very familiar with it because 4 of my siblings have a different father then I do and their father was an addict. Of the four, 2 are addicts, 1 never tried any kind of drugs, and 1 can handle them. It is a very difficult disease to manage and as you know you are going to have a tough time with fibro. You have to stay away from many drugs and limited choices with fibro is no fun. I am so very sorry for this double whammie you have been dealt. Do you belong to an addict support group? That would be a good idea for you. There are many different types of them if you are not interested in the whole 12 step thing. I really wish there was something I could do for you. I can't even imagine how difficult this is going to be for you. I am available to talk anytime you want. I wish you all the luck in the world and will pray for you.

I hear your frustation regarding the med situation, Fluffyluggage! I am not going to take more meds than I need! I deal with addicts in my job, and understand the dynamics. I just want my pain to go away! It has gotten much worse with stress this past year. I was sent to a Rhuemy, who cheerfully told me that studies show vigorous exercise works, and wrote a prescription to a physical therapist! I understand that exercise is good and does loosen the muscles, and I do need to lose a bit of weight I gained over the past 6 years, but that is not the prime cause of my pain! He was so smug, I wanted to slap him! I can't exercise if I can't get out of bed!! I am having hormonal fluctuations due to peri-menopause.I have trouble swallowing pills, and need a Dr. that will work with me. So far, no luck. Guess I have to explore other Dr's in the area!

HUGS!!!!! Karen ; )