I understand completely where you are coming from. I'm 33 I have an 8 yr old and a 9 yr old. It breaks my heart when I have to tell them not lean on me or hug me to tightly because "mommy's skin hurts". They try to understand . . . but how can they really. I have been sick since I was 21 ... it was quite sudden ... first it was the chronic endometriosis that I battled with for 10 years . . . and then I was diagnosed almost 2 years ago with fibromyalgia and restless leg syndrome, after a surgery I had had for the endometriosis. FOr the last 12 years I have been the one that has led the doctors to the correct diagnosis and trying different meds in hope of some relief . . . after i ran out of ideas i finally caved and went to pain managment . . . that i avoided for years . . . but i was at my wits end. they gave me 13 shots in one treatment . . . ofcours i felt nothing . . . and then they said the same thing that they told you . . . up to 3 weeks . . . that relief never came . . . and then they said they could not help me so I went back to my trusty doctor. I have a problem that has progressvily gotten worse not only do I metabolize meds quickly but I have developed an allergy to opiates that has gets worse as I increase the dose . . . all I really want is a med that I can take at the end of the day or when it is really bad . . . that can just take me away for a little while . . . i want to fall asleep not in pain. I often feel that I should put all my surgeries and meds that I have taken and I am currently taking in resume format . . . do you feel that way?for pain I've taken vicodin (very allergic to), darvocet, tramadol, percocet (took a lot of that for the endo pain until I became allergic to it),oxycontin, hydromorphon, methadone and fentanly . . . i am now allergic to all of them . . . i get very, very itchy for days, only to be relieved by very high doses of benadrly that reder me unconcious and useless for days. nsaids are out of the question . . . they created an ulcer . . . after over using them for my endo pain (i wanted to be concious for my childen). so I am currently taking: 1200 mg 3x neurontin 90 mg cymbalta 600 mg 2x lodine .5mg estradial (hormone replacent) protonix for the occasional ulcer flareup phentermine (for energy, which really, I haven't seen a difference, so I need to reconsider that one) I always hope that it will get better . . . with the endo . . . I had years in between the surgeries that I was well . . . and was the person I wanted to be . . . but this fibro thing . . . has thrown me for a loop . . . there's no surgery or surgen that can make it better.  My family keeps me going . . . they believe that I will get better . . . so I try for them. I keep involved in their lives . . . I volunteered as much I can at their school . . . I led the art program for the entire school. This year I will be homeschooling, so will see how that goes. They know I must take a nap and are understanding that sometimes we I need to take it a little slower. how are things with your family (if you don't mind me asking?) take care eve |
"I am so happy to be a part of the MDJunction family! Where I used to be alone, I now have friends whom inspire me, comfort me, support me, and do not judge me. My new life began October 17, 2008. I weighed in with severe depression, social anxiety disorder and avoidant personality disorder. I was born with complications but I am fighting for my life and I will survive!!" (apieceofwork)
and am worried. I spoke to my gastroendrologist who told me not to worry, but I have noticed that whenever I "bear" down, I have a spot about a couple of inches above my belly button that comes out... and from what I read on the internet, they require surgery. It does go away when I lay down. 
