and you did not intrude on any discussions....no worries about that!

Well I took a 3 day sabbatical to see what would happen from a withdraw problem and if my condition improved at all. The fact is I experience no withdraw symptoms at all and the problem never went away, instead, I felt someone worse in the area where my pain had localized itself on my lower back, so I went back to taking them again.

I wish there was a full proof drug that takes away the pain without the other junk effects. I mean, I certainly didn't mind the first month of feeling good about myself, the earth, and all my fellow minions. But now that the enjoyable part is gone, I am sad to say I must be on the search of another drug since all of the non-narcotic pain meds also do ... zilch. It's been over 2 months since I've taken and Vicodin too, so I thought I would take one to see if after a 2 month sabbatical I would feel the groovy effects again. No such luck. I only ended up waking in the morning to the jonzing feeling which makes sense since I had taken Vicodin for years.

Someone make a perfect drug please.

i take meds for

altace, high blood pressure,10mgs

lyrica,restless leg sydrome,300mg a day,

zocor,high cholestrol,40mgs,

prozac,depression, 40mgs

prevacid 60mgs a day.

ultracet w/tynol 50mgs

ambian cr 12.5 at bedtime

plus some vitamins

[b]

Why did I think the pain would be ok? Almost a month ago I started on doxycicline for misdiagnosed lyme disease. Seven years ago I presented myself to my doc (different from current one) with the bullseye rash, having removed the tick myself,etc etc. He did a lyme titer which was of course neg--not time for antibodies yet. He never followed up and told me I was neurotic. I never mentioned the tick/rash to the new doctor whom I started seeing 6 1/2 yrs ago. This is the md who dx fibro.

I am certain I do have FM, but it is secondary to chronic lyme!

I would never have believed how much better my pain is after almost a month of antibiotic therapy for the lyme. I will be on antibiotics for a very long time, and expect to actually have IV antibiotics soon.

All my FM friends, even if you can't imagine ever having been exposed to lyme, please read a little about it on the other site! If you'd ever told me i could have even 1 nearly pain-free day before this i would have called you crazy. My pain was so severe I was truly suicidal. You will have to wage war practically to get the help you need if you do have lyme disease, but there is great info on the other forum here and at lymenet.

Are you seeing a LLMD? I hope so.

Yess fibro friends, read up on lyme, it is a strong possibility. Most people who actually have lyme were dx with fibro first!

I was dx fibro 3 years ago....just now figured out the lyme and I am on my way to my first LLMD visit right now!!!!!!

read up a little on lyme at www.truthaboutlymedisease.com great site

It's been a little while since I've written on the other site. My doc is "sort of LL"- by that I mean that he believes me, has started the oral antibiotics, and is doing some research/ conferring with other docs about how to proceed. This of course means that I am steering him in the right direction of what "course" that needs to be. He knows some about ld, but isn't as much of a believer in the AGRESSSIVE treatment some of us will need--YET. He will become a believer soon enough , and it is my mission to lead him that way. Until then, the treatment oral doxy. is helping alot! I know that it will take a very, very long time (he agrees) but I am cooperating with this until he is persuaded to go to iv therapy.

there are no true LLMD's anywhere near here. What do you think?

My pain level lingers at a 7 or 8 usually and "good days" are rare. I am hopeful that working with Dr. Leak is going to give good results. It seens to be moving in that direction.

I have been ill with this since 1995; sometimes it feels like 100 years. Like you, I have all the symptoms of Lupus. I have not heard of the autoimmune disorder you have, I want to learn more about it; I am wondering if I have that.

Thanks for sharing, it is nice to know were not alone![b][size=4][/size]

And this was while I was recovering from a broken neck and a head injury!!

I have written letters to my state legislators. But maybe writing to the Dept of Health and Human Services and the FDA would be more effective. But, yes, we all have to keep trying.

My pain management doc recently met with my states' first lady, who is heading up a health care reform committee. He presented my case as an example of how the system is "broken". Let's hope someone is listening!

Ciao

[b][size=4][/size]

I am soooo sorry that the Walgreen pharmacist abused you in this manner! I certainly hope you pursue many legal courses of action, including filing a complaint for her having violated your HIPPA (privacy) rights!! Even if it weren't illegal---it is complete immoral for someone to do this. In support of you and what you have gone through, I am now going to "boycott" walgreen's. I've already ditched CVS because of how they've treated me. Incidently, my family's co-pay is several hundred dollars per month for meds, with insurance paying thousands, so the loss of our business ought to mean something to them. Nevertheless, it means something to me to not do business with any pharmacy who employs such judgemental, ignorant, and abusive people. This woman is a shame to her profession. Better luck to you, friend.

I use a locally owned pharmacy now, and they are wonderful...don't make you feel like a drug addict because you are prescribed meds.... it's ridiculous.

I said to walgreen.... "don't you think if I were doc shopping, I would have had my automatic refill done , and then took the script elsewhere to get it filled?" DUH!

Beachbunny- I am in ohio, I will get you a list of llmds in PA...that's where I go.... I will pm you when I get a chance...I will have to go through some old paperwork to find the info, and have been feeling like death lately....so give me some time...

we'll get you help.

j