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11/09/2007 22:51
angelcath6567
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Hi everyone,

Can I get a general consensus on what types of doctors you all go to for the fibro?

I am waiting on an appointment with a pain management specialist on 12/12. A rheumatologist diagnosed me, but said that was all he could do and recommended a pain management specialist. My family doctor doesn't seem to know enough about it to help much.

I am hoping the pain mgmt will help, but I am also worried that I am waiting for something that is going to be useless! Any input would help!

Thanks

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11/10/2007 04:26
Snoopy30
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my rheumy who diagnosed me is the one who handles things for me. I'm very lucky that I have one who treats fibro not just diagnose and nothing more
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11/10/2007 06:15
Wayney
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I was originally dx'ed by a worthless rheumy. He dx'ed me and left the room after giving me the short, less than informative AF pamphlet on fibro. I ended up seeing his associate, another rheumy who was ok. Then after a 3 yr period of no insurance, and no docs...I started seeing a pain management doc. He has been awesome. He actually recommended my new rheumy when I was hesitant because he worked for the second one I saw. I currently see the NP most of the time at the pain management office for treatment of pain and to treat my fibro. My rheumy handles my RA. Although he does monitor all the meds for my fibro to make sure I am being fully treated.

I'm lucky. My pain doc, the NP and rheumy are all great. Actually, the NP asks about my RA meds. Neither her or the rheumy contradict each other leaving the expertise up to the other. But I know if both of them mention the same thing, it's likely a good idea.


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11/10/2007 11:22
bshapiro
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did the rhum. dr not reccomed any medication at all

flexeril or nortyptaline 10-30 mg at night for better quality sleep? (I tolerate flexeril better)

Lyrica?

Treatment for Fibro is more than pain management

can he also refer you for a sleep test? If he can make sure the include the test for UARS it's called PES & is relatively new.

from my reading lately most people with a airway related sleep disorder have UARS that is often missed without the PES which tracks negative air pressure in the esophagus.

here's some of the science - courtesy of DR. Podell MD

"Both FMS and CFS disrupt sleep quality. Poor sleep, in turn, worsens physical and mental stamina. Poor sleep also increases sensitivity to pain. These, of course, further disrupt sleep. "

here's a link to a lecture he gave on Sleep & sleep disorders & FMS/CFS - I urge you to read the first 2/3'ds at least.

http://www.drpodell.org/improving_sleep_quality.shtml

Post edited by: bshapiro, at: 11/10/2007 13:24

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11/10/2007 14:50
Honey45
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I was going to a fibro. specialist until he moved to Washington D.C. Right now, don't laugh, my ob/gyn has been my fibro. doc. I also have been trying to find a Family Medicine doctor. I have an appt. with an Internist soon. At one point, I went to a Pain Specialist all he wanted to do was prescribe, Methadone. I took it for a short period, and quit the doctor and quit the methadone.

A jerky rheumy diagnosed me with fibro. I also stopped seeing him. He had a bad attitude!


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11/10/2007 14:52
angelcath6567
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The rheumatoligist gave me a script for flexeril, but that was it. I had a sleep disorder a couple years ago. It had good results. My doc said "results arent perfect, but they aren't bad either." I asked my primary doc for Lyrica. He gave me a script but my insurance co. won't pay for it. I was on neurontin for my back and it didnt help at all, for that reason my primary won't give it to me!! Soooo.... looks like I have to wait til I see the pain mgmt specialist
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11/10/2007 14:53
angelcath6567
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Fibro fog go away LOL I didnt have a sleep disorder, I had a sleep study lol
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11/10/2007 14:58
Honey45
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I barely enter stage 3 sleep and completely skip stage 4!!!!

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11/10/2007 21:58
bshapiro
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flexeril 10 -30mg at bedtime for sleep

as you know many of us can't tolerate a lot of meds well.

I just read somewhere that the way to get around this is to take less to start - chrush the tablet & estimate 10% whatever to start.

often if you try the other stuff 1st the ins will pick it up.

my hmo's formulary doesn't cover Lyrica straight off but I reminded my pcp via email that I'd been a good boy & tried nurontien 2x & nortyptryline keeps me from peeing.

so check you ins. & see if you waste enough $$$ on meds that don't work will they pay for it then? helps that it's now FDA approved & they can't call it experimental.

it was only approved in June so they may be a little behind in their policy updates - it doesn't hurt to remind them

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